Hi, if you’ve seen my previous post you would know that my dad cannot tolerate more than one half of c/l. He is tremor dominant and we are wondering on the best medications pwp have taken that work for tremors other than c/l
Also if you have any suggestions on things to bring up or explore with his specialist, kindly let us know. He only gets this opportunity once or twice a year!
Hi, tremor is the most difficult symptom to treat. Some of the drugs may work but are not good for the brain particularly Anticholinergics.
As to making good use of his time. this check list will give you some ideas of possible issues. I suggest your father pick his top 3 issues, that is usually all you have time for at a consultation.
Good luck.
Tremors and other movement disorders are usually associated with vitamin deficiency; most vitamins are B1, B6, and … B12. steadiwear.com/blogs/tremor...
A B complex is important, but I also highly recommend HDT. healthunlocked.com/cure-par...
I find that reference very unconvincing Gcf. It confuses essential tremor with Parkinsons tremor. They are very different.
Thank you!
I don't remember if I have responded to you before. If I have then I apologize. Fast Walking is the ONLY scientifically proven way of reversing PD symptoms. You dad may only be able to walk fast for a couple of minutes, but that is normal. If he walks as fast as he can every second day, it will slowly build up to being able to do it for one hour, never any more..
Good Luck
Thank you for that info, JohnPepper. Do you have any more information on walking fast. My husband and I Walk everyday, not at a fast pace but at a good pace. Does this make a difference? You also say that fast walking can reverse PD symptoms? I would like to know more about this, please. Very interested. Thanks
I have a book on Amazon, with you will find if you look up my name. I recommend you read the Mayo Clinic study result which proves beyond doubt that fast walking, every second day, as fast as YOU CAN will reverse your symptoms. I have been more or lewss PD symptom-free since 1998.
FWIW, C/L doesn’t help my tremor. I take Artane for that. So far, 1/2 pill once a day works for me. There are side effects for some people but it’s fine for me. Did have side effects with Amantadine, so I switched.
I am in a similar boat. My main symptom is the right hand tremor. C/L is not controlling the tremors. Neurologist also tried Amatadine but it didn't do anything. I am waiting for MDS appointment. In the meantime, Propranolol is working for tremors. It reduces tremors by 50-60%.
Trihexyphenidyl HCL is good for tremors
C/L may help little for tremors,, sometimes it magnifies mine. EXERCISE like John Pepper's walking does the most for me to calm the tremors. I feel that the energy put out to the vigorous exercise somehow takes away the tremor.. don't ask me how though. Also get plenty of rest. lots of B vitamins Lions Mane etc,,,Stay away from sugar!
I see I missed your dad’s appointment by more than a week, but I’ll go ahead anyway. There are other options. One is a dopamine agonist, such as pramipexole or mirapex (the same drug by a different name). Many PWP won’t touch it because of its well known potential to cause impulse control disorders. You can read up on that in a variety of sources. I don’t know why your father can’t tolerate C/L, so I also don’t know whether he would do better on this. I would imagine he would be started on a very low dose.
Also, don’t confuse pramipexole with propranolol, mentioned in another response, which treats essential tremor (and which I have in addition to PD). However, that tremor is very different in character and is usually equally prominent in both hands whereas PD typically affects one side much more than the other, at least to begin with. Essential tremor is a far less serious condition, but I would presume your neurologist could distinguish it from PD.
Besides medications, would it worth looking into the gloves to help control....they are weights, and vibrate but the signals in the vibration might help.
Does he get any massages? Having the craio-sacral massage and the "median points" in the head relaxed, also can help with the tremors to relax and allow the brain to not work so hard.
Does he do any sort of weight exercises? even sitting or lying down? the act of holding a weight (3lb, even) can help the muscles in the arms stretch out --instead of being "on fire" with the movements from the tremors.
If he walks, one of the purposes of the fast walking is the activation of blood pressure rise and adrenal gland ---and the heavier breathing....it helps the brain and the receptors and neurons to work and then relax. If he's at least walking, does he use the walking sticks that helps control the arm movements by holding on with the hands? The tremors might still be there, but working, they most likely will calm down --and the cognitive success in the brain: moving legs, moving arms, moving the walking sticks (they make them for PD with the adjustable lengths but do NOT get the collapsable ones. Dangerous for some), concentrating on where to go and watching the pavement or path....all works in favor for him ---and you.
take good care and keep sharing
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