Parkinson’s question

[Parkage]

my GP diagnosed me and started me in apo-levocarb 25/100 three times a day and it does not stop my shakes in my left arm, so he then I went to see him and he doesn’t discuss anything , he just added one more pill and that made me extremely tired and brain fog and didn’t help the symptoms. I find it very frustrating because he won’t talk about anything with me. Any suggestions. I have tried for a referral to a specialist, it it’s been months and I follow up, it still no one available... anyone else out there also suffering and not getting any answers.

[park_bear]

I had to look up Apo-Levocarb. It is just the usual carbidopa levodopa. I too take carbidopa levodopa and it does not help much with my tremor either. I just put up with it because it is not too bad. Does it help with your other symptoms?

A GP physician can be okay, but not one that will not talk to you. The only solution I can think of is to get another doctor.

[Parkage in reply to park_bear]

Medication does not help with balance issues, schuffle when walking

[park_bear in reply to Parkage]

This medication is strictly for symptom relief. If it does not help with anything there is no point in taking it.

[DachshundFan]

You definitely need a new doctor.

Did this doctor talk to you about the importance of exercise?

Do you have access to a neurologist who is a movement disorder specialist?

Good luck.

[Parkage in reply to DachshundFan]

no, only have the GP, I finally got a referral but haven’t gotten back to me, as they have to go thru. My family doctor and my family doctor doesn’t fee,l I need a specialist. The pills don’t stop the tremors, the only other symptoms are the shuffle when I walk and twitch left arm and I find I lose my balance

[Parkage in reply to DachshundFan]

my doctor only said I have Parkinson’s and here is your pills , offered no other advice and didn’t want to talk to me any further, I read online about exercise and so I get out and walk. I like this forum because people have been. So helpful

[DachshundFan]

Sad that you have to go through your doctor. Add these sites to your reading list:

parkinson.org/

michaeljfox.org/

rocksteadyboxing.org/

I schedule a Google search every morning to email me the latest news about Parkinson's.

Bert

[ddmagee1]

Please know that taking Carb/Levodopa pills does not stop all your symptoms, of tremors, balance issues, etc. Carb/Levodopa helps somewhat, like tremors, stiffness, rigidity etc., but it does not miraculously stop symptoms! I’ve had Parkinson’s for many years, now, and am in the advancing stages, where nearly every system in my body, has been affected! Initially, taking Sinemet helped relieve tremors, stiffness and rigidity problems, enough so that I could basically function. Over the last 6 years, my dosage has been incrementally raised, and has continued to help. Balance problems, eye problems, swallowing, digestion, constipation, heart palpitations, muscle spasms, dystonia, peripheral neuropathy, and facial numbness, along with ringing in the ears, and more difficulty in walking/ambulating, are all, only minimally, helped by Sinemet ( Carbo/Levodopa). So, that’s been my experience. Range of motion, and Parkinson’s specific exercise, help me, a lot, to basically function, on a daily basis, albeit extreme slowness and a shuffling gait, along with sort of a hunched over nature. I hope you get an opportunity to see a movement disorder specialist, and/or neurologist!

[DrewE]

my most obvious off symptom is tremor in my left arm. I take 25/250 4x day and entacapone and I am able to maintain control for about 4 hours. Diagnosis late 2013.

[Astra7]

I see an expensive neurologist and all they have ever done is increase my madapor dose from time to time, and added pramipexole after a few years. No advice re diet, excercise and supplements. I don’t really think they can do much and I don’t really think they care! This forum is much more helpful especially if you treat other peoples experience with caution and try things out one at a time for yourself.

Good luck.

[blogger_7]

I do not respond to C/L either. Please go to my blog silverliningsandparkinsons.... and read the page, 'recently diagnosed?'

Feel free to browse my story , pages and posts and follow me.