twitching

[Thyroid2468]

I have had long wait to get into Neuro (finally get in this Thursday). And have even longer wait to get into Movement disorder specialist. (October). I have RLS which seems to be treated OK with LYrica(pregabalin). But about 4 months ago I started getting full body internal vibrations all day and night. I have accepted fact that it could be Parkinson's because my brother has it as well as multiple people on the paternal side of my family. I also have a first cousin with MS. My question is last night I started having twitching in right thigh. Like a nerve twitch, or muscle contraction. It has continued to happen this morning as I sit and write on computer. Is twitching common in Parkinson's. I saw it can be early warning of ALS which makes me pray that Parkinson's is my diagnosis. Any thoughts, insight and support?😪

[Stillstandingstill]

someone asked about this fairly recently and lots of people with PD diagnoses replied that they had twitching. (Me too by the way.) Hopefully that helps.

[Thyroid2468 in reply to Stillstandingstill]

thank you! I will see if I can find the other post…

[Stillstandingstill in reply to Thyroid2468]

healthunlocked.com/cure-par...

Not sure I've done the link correctly but this is the one.

[Thyroid2468 in reply to Stillstandingstill]

thank you! That was so helpful… I wasn’t able to find on my own. I actually wrote them to see what they finally learned…

Thank you still standing still… 💜💜💜

[Stillstandingstill]

you're welcome. 👍

[Bolt_Upright]

I too have Hashimoto's and possible PD. I also have REM Sleep Behavior Disorder.

I have had twitching for many years. I seem to be reducing it. My RBD is getting better also.

I have a web site where I am starting to compile everything I am learning and what I am trying: pdprotocols.atwebpages.com/...

[Thyroid2468 in reply to Bolt_Upright]

thank you, I will check out and get back with more questions. It all sort of hit at once….

[ddmagee1]

I had twitching, noticeable in my hands, and lower arms, primarily, in the earlier stages of diagnosed PD! After a few years, it dissipated! Now, 10 years later, I do not have twitching, except for an occasional rare time!

[Thyroid2468 in reply to ddmagee1]

Thank you....this early period of not knowing makes it scary. thanks for your input...I wonder if the meds stop the twitching?

[PalmSprings]

What a day, to hope the diagnosis is Parkinson’s. But I totally get the situation and this is really the take-away, anyone could be diagnosed with something “worse”. If you do have Parkinson’s, this place is a great place for support and compassion and for that matter, for any diagnosis, support and understanding go a long way.

[Thyroid2468 in reply to PalmSprings]

Thank you! Agreed. I should know something in the weeks to come, and actually knowing will be helpful with the coping process. Limbo is not good for anxiety! thank you Palm Springs....

[HekateMoon]

hi. I used to have twiching 4 years ago. I think my walking regime sorted it out...hope this help.

[JustJeff]

had twitching in my neck which disappeared after starting Madopar