pain management

[Nichole1133]

how do u deal with the pain.i use fentanyl patch, however its not must pain relief

[Hidden]

Where is your pain exactly? Are you sure it is Parkinson's related?

[Nichole1133 in reply to Hidden]

My pain is muscle, burning, aching, then lower back burning pain which radidas up spinal cord and spreads out . My fingers hurt . My neck, upper back ,and ribs . Ect it just moves around different types of pain . Legs and feet pain , tenderness and aching are getting worse, i think its from cramps. Whoever never goes away. Been like this for over 2 years now . Some days worse than others . I'm on fentanyl patch and anti inflammation non steroid.

[Nichole1133 in reply to Hidden]

However I do also suffer from sarcoidosis and PSOS and emdomterosis .

[Hidden in reply to Nichole1133]

I'm not so sure you have Parkinson's?Emergen C helped me with pain in my thighs. Take one pack a day for at least 3 weeks and see how you feel. 🥊 Keep fighting!

[Nichole1133 in reply to Hidden]

Iv noticed alot of people don't get alot of pain with there parkinson's, however every utube video or parkinson's story I watch on information about it , it's says it's very much part of the disease, it just different for every person. But iv found most people on this forum, don't have any pain. Which is strange.

[Kia17]

Very low carb diet helps reducing pain. Intermittent fasting is also quite helpful.

[slimweiss]

My husband's pain specialist is going to do a test on him to see if he is a candidate for SCS Therapy using BurstDR stimulation. It's a low energy treatment for chronic pain which requires a small device to be implanted in the back. It interrupts pain signals with low doses of stimulation. It's called the Proclaim XR SCS System. He always has lower back pain and sometimes pain all over. The doctor thinks this might be a good idea for him. We shall see!

[Nichole1133 in reply to slimweiss]

Thankyou for your reply.

[Nichole1133 in reply to Nichole1133]

I have heard about that type of treatment. It seems to work well for people. All the best to you and your husband.

[slimweiss in reply to Nichole1133]

Thank you. He's tried so many things to manage his chronic back pain (since 1981). Prolotherapy worked great but then when PD showed up, nothing seems to work except being "on". The doctor has done 100's of these with great success so fingers crossed.