"Ultra-powerful 7T MRI scanners could be used to help identify those patients with Parkinson’s disease and similar conditions most likely to benefit from new treatments for previously untreatable symptoms."
PDWarrior1900 I'm very glad you showed up and are researching some of those holding promise. The Coronet Red Hat study is perfect example. There is some very positive history re Photo Biomodulation. I've said this before, the Parkinson's Disease cure has not been going well. I have advocated taking OUTSIDE THE BOX RESEARCH, and giving that a try. It sounded good at the time, but what the Hell was I thinking?
Two years ago we saw medical research at its rock bottom worst. A very esteemed foundation that has raised north of $ 1 BIL somehow ingested more misfolded protein then they could handle. The Foundation wanted to partner with the brainy research group. Egos classhed, and when all the misfolded proteins settled to the floor, the collaborators agreed to disagree and went their separate ways.
The Foundation showed the world how fast a billion $$ can travel. They put the pedal to the metal. The brainy research goup, some having studied this 30 + years, submitted their
trial results some 60 days later. Unfortunately the. Foundation couldn't offer brainy research group any praise. In fact, instead of a pat on the back, they trashed their report.
I sometimes wonder how far up the ladder we would be if the collaboration remained intact.
There are many health care professionals who agree PD is an evolving medical tsunami. PD is the fastest growing neurological disease on the planet. See The Emerging Evidence of the Parkinson's Pandemic, Journal of Parkinson's Disease.
OK where am i going with all this? I've made the decision to go back on TASIGNA. ONLY IF I CAN LOCATE A MD TO PRESCRIBE IT AND FOLLOW ME WITH MONTHLY EKG AND BLOOD WORK.
I was on TASIGNA two different times, from june 1, 2017 to April 4, 2018 a total 307 days +/-. I took 200 mg capsule once per day.
My second time was from Oct 11, 2019 to. Dec 9, 2019 62 days +/-. Dosage was 150 mg
NOTABLE ACHIEVEMENTS
1. DAY 5 JUNE 2017 Did not take SINEMET during the night.
2. DAY 10 Sleep improving . Not a straight line up. Still had 2-3 hr sleep nights.
3. Hopping out of bed. My core most mornings completely limber.
4. Able to traverse stairs normally. No baby steps or half stepping.
5.) No foot drag while walking
I dose every three hours 24/7 beginning 05 am. Back then i was taking 2,000 to 2,400 mg Ldopa daily.
6. Barely into my 3rd week brain fog was gone. My core was becoming more limber by the da.
thanks... i spend 1 to 2 hours every day researching PD... i am ENCOURAGED about soon-to-come treatments/ therapies and a CURE! ...i was not clear however, with your comment on the coronet -- did you see any positive benefits?
Warrior you are correct, a cure is coming. The. FDA will not allow any fatalities in their trials. I guess it was much different back in the days of Chronic Myelogenous Leukemia. If you didn't take GLEEVEC you'd be dead in three years. I know my doctor is truly looking out for me. Chances looking very good if I survive another five years I'll wind up in a bed somewhere and I won't know my name. That's not living in my book.
Here's a couple for you warrior and anyone else who wants to join in. The subject is baseball trivia.
1. How much does a Major League baseball weigh? Ounces please
2. How many stitches are on a MLbaseball?
3. In what year did the MLB HOF open.
4. There were five players inducted in the first class. Name them.
5. Who is the only person in the HOF who was voted. MVP in both leagues?
Thanks for sharing. This is really interesting…my hubby has pretty severe cognitive impairment, at this point, and the researchers in this article hypothesize that noradrenaline deficiency may be the culprit. I’m gonna read up on noradrenaline for sure.
I just checked and noradrenaline is the same as norepinephrine FYI. And I found a good summary of noradrenaline loss and PD here:
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