How can people feel what Parkinson's Disease is?

[saf2825]

nothing

[ddmagee1]

Very good comparison’s! I have found out, that in this COVID era, many people are so caught up with their own concerns, that friends, family, and even medical providers, seem to have lost any concern that they used to have, concerning dealing with me and my Parkinson’s Disease, and how difficult it can be for me! It’s a bitter reality, but the truth, unfortunately! I’m sure I’m not the only one that feels this way. So, this blog is where I get most of my support! I feel that I’ve been written off, so to speak, by many, who I thought had cared for me, and my daily struggles, of having Stage 3 Parkinson’s! I push myself to be able to do stuff that used to be easy for me, and the help and understanding I once had, is pretty much gone! Oh, and, by the way, I am a caregiver for a wife, who is in heart failure, has diabetes, where she must have insulin shots all day, and is in Stage 3 kidney disease! I don’t want sympathy. I just would appreciate understanding and help once in a while, from people, that, seemingly, used to care! Meanwhile, thanks to all on this forum, who have been so supportive!

[SAGoodman in reply to ddmagee1]

Ddmagee1 I feel the same way about the culture of your modern world, and read this blog every morning to see what everyone has found new out there that they have tried or may have questions about.The struggles are definitely real every day, and to be honest, most people that have not been involved with PD really don't even know what it's about.

You are doing the absolute best with your wife's situation I am sure, and you just have to take every day as it comes.

Prayers and blessings to you!*

[ddmagee1 in reply to SAGoodman]

I sure appreciate your support SAGoodman! It’s great to know that somebody understands, and can appreciate the difficulties involved, with living with PD, in these difficult times! Thanks again! I feel more encouraged now, as I face another day, more challenges!

[SAGoodman in reply to ddmagee1]

Anytime! We are all here searching for answers and encouragement when we get down. I know his group has helped me out more than they know!

[blogger_7]

saf2825 I received my diagnosis for four years ago, and I am now 75, so our symptoms are probably way different. Were you diagnosed with early onset PD? ddMagee1 I can't imagine how difficult it would be to be the care giver of a wife as ill as yours is, while striving to cope with stage three Parkinson's. My heart goes out to you. SAGoodman You say you check this blog each morning to see what new thing people have tried. May I suggest you check out my blog silverliningsandparkinsons....

[ddmagee1 in reply to blogger_7]

I am 75, and was officially diagnosed with PD five years ago. I had symptoms, like freezing, falls, rigidity for about 10 years before diagnosis. I also have Cerebellar Ataxia, diagnosed about 33 years ago, so that compounded the later diagnosis of PD, for me. We had lived in a small town, where there were no specialist Docs, in neurology, during the 10 years previous to my PD diagnosis! My wife had quadruple heart bypass surgery, at the Cleveland Clinic when she was 48 years old, and has had three heart attacks since, with 4 stents being inserted over a number of years. A couple years ago, when she went in heart failure, the Docs said that they had done all they could with stenting. Last year subways found to have a leaking heart valve, that has not been operated on. Thanks for your supportive words!

[blogger_7 in reply to ddmagee1]

ddmagee1 if you look at my blog, the home page provides my story. The latest discovery I have found has given me my arm swing back and my drooling is 95 % stopped and lately I discovered that i have new hair around 3 inches long filling in the areas where it had been, giving me a widow's peak. I'm fee confident I am on the right track. Sue

[JayPwP in reply to blogger_7]

I tried looking at the link you provided.

Please share with us what is the latest discovery that has benefitted you with arm swing and drooling.

[blogger_7 in reply to JayPwP]

JayPwP, I'll put a space in, so you can see the entire address an then you can combine when you put into browsersilverliningsandpark insons.home.blog/

[JayPwP in reply to blogger_7]

I have gone through the website and I am not able to understand the latest discovery that has benefitted you with arm swing and drooling.

[blogger_7 in reply to JayPwP]

Go to the transparency page it is at the top of the home page between Quicksand and INDEX... sorry, I should have been more explicit. Sue

[JayPwP in reply to blogger_7]

LuminAloe??

[blogger_7 in reply to JayPwP]

if you go to the transparency page, you'll be able to see what has been making a difference in my life... and if by any chance you can be on a zoom call tonight at 9 o'clock, you can learn what ingredients are in it. Or 7 hours from now... since I do not know what time zone you are in.

Wednesday

7pm MST

SCIENCE & TECHNOLOGY - ZOOM MEETING

With MARVIN HIGBEE

CHIEF OPERATING OFFICER - ASCEND SCIENCES

HOSTED BY REG MCDANIEL JR & BEAU JOHNSON

us02web.zoom.us/j/872435095...

[JayPwP in reply to blogger_7]

Thsnks

[Shorebird in reply to blogger_7]

Hi, thanks for sharing. The link didn’t work for me unfortunately.

[blogger_7 in reply to Shorebird]

Shorebird I'll put a space in, so you can see the entire address an then you can combine when you put into browser

silverliningsandpark insons.home.blog/

[ddmagee1]

Thanks!!

[blogger_7 in reply to ddmagee1]

ddmagee1 in case it didn't open for you... I'll put a space in, so you can see the entire address an then you can combine when you put into browser

silverliningsandpark insons.home.blog/

[Hmop in reply to blogger_7]

I can not open it Please write me again

[blogger_7]

saf2825 I do not understand how this site works, for sure. I assume you have seen the communications following your question. But in case you don't I wanted to personally invite you to attend a Zoom meeting that starts in just over 6 hours from now: Wednesday 7 pm MSTSCIENCE & TECHNOLOGY - ZOOM MEETING

With MARVIN HIGBEE

us02web.zoom.us/j/872435095...