Tremors : Has anyone had any success with... - Cure Parkinson's

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Tremors

Smittybear7 profile image

Has anyone had any success with eliminating tremors? Thanks

33 Replies

An oddity...my tremors completely ceased for 2 - 4 days after each of the 3 Pfizer shots.

It is all in your mind!!

As for tremors, I have not found a supplement to eliminate this.

Some insist that regular cardidopa/levadopa does this. I have not found this to be so.

What I have noticed is that tremor in my spouse is linked to the level of anxiety. To keep anxiety at a minimum I use 500mg L-Tryptophan and 10mg Lithium from Lithium Orotate in the night stack 📌

* Response also here for ease of reference 🌺

Thanks for sharing

Yes. c/l eliminates it for me.

Smittybear7 profile image
Smittybear7 in reply to Levod

At what dosage? When I increased the c/l the tremors increased in frequency and intensity. Your thoughts thanks

Levod profile image
Levod in reply to Smittybear7

The dosage must be high enough to raise your blood concentration of levodopa above your therapeutic threshold.

Everybody's therapeutic threshold is different, but I think for most people starting to take c/l, 100 mg of levodopa should be plenty enough to stop the tremor, especially if you have not had PD for that long.

I have never heard of levodopa increasing the tremor frequency and intensity.

Perhaps what you are experiencing in not a Parkinson's tremor.

FYI:

aafp.org/afp/1999/0315/p156....

"The tremor in Parkinson's disease occurs at rest and is characterized by a frequency of 4 to 6 Hz and a medium amplitude."

Note a Hz is the frequency measured in cycles per second.

Smittybear7 profile image
Smittybear7 in reply to Levod

Thanks for the information. .I'll start to keep track of when I have the tremors. It seems like my tremors fit a couple of categories. Stress exacerbates them as does exercising. When I do something with my left hand that I use to do with my right hand it tremors. I can't get any relaxation from meditation because of the tremors. When I wake up at night to go to the bathroom sometimes I can't get back to sleep.

jocelyng profile image
jocelyng in reply to Levod

Not for me. I take 1 25/100 3x/day and still have to take 1/2 Artane 2x/day to control the tremor.

Smittybear7 profile image
Smittybear7 in reply to jocelyng

Any side effects from Artane?

jocelyng profile image
jocelyng in reply to Smittybear7

A little bit of a memory issue, but nothing like what I had with Amantadine.

Smittybear7 profile image
Smittybear7 in reply to jocelyng

Thanks

No

I am currently off Levodopa: My balance, coordination, stiffness have improved but tremor and drooling have gotten worse.

Smittybear7 profile image
Smittybear7 in reply to Gcf51

Thanks for sharing

I have been on Sinemet 25/100 2x3 for well over a year and it does not reduce tremor more than slightly. Reduces rigidity and stiffness. My tremors usually stop during the night. Right hand completely and left hand almost. Stress aggravates very much. During meals tremors make eating difficult.

Thanks for sharing

C/L works so much better on an empty stomach.

Thanks for sharing

Carbilevodopa quells my tremor.

Male diagnosed 2018 at age 48, (otherwise seemingly healthy and active).

Dominant right side hand and/or foot tremor (definitely affected by higher excitement or stress). Some stiffness, like an achy shoulder, fatigue, restless sleep, but no constipation or loss of sense of smell.

Tried carblevo c/l , 25/100mg, 1 pill 3 times a day, for a month, a few months after diagnosis and there seemed to be no effect, so stopped.

Tried c/l again a year later (after trying anti anxiety/seizure drugs that had minimal effects) and gradually built up to 2 x 25/100mg pills 4 times a day (breakfast lunch dinner bed) to the point that it eliminates tremor after about an hour and lasts for about 3 hours (so that’s why 4 hours between doses).

Initially at this highest dose I had some dystonia, foot and hand curling, but that faded. Also in general it has eliminated any acute achiness. Some nausea within half an hour if without some food. Dose can be ineffective if taken too close to high protein food. Often a wave of fatigue as it kicks in and I still suffer fatigue in general.

My neuro said that the 750mg -1000mg total per day is the “sweet spot” that should have an effect if at all.

Over time the tremor has still progressed slightly and reappears more quickly if I wake in the night or at morning wake up. I have played with magnesium and melatonin to some effect.

Smittybear7 profile image
Smittybear7 in reply to Snowski

Thanks for sharing. I also use magnesium complex

C/L 255/100 3 x per day completely controls my RH tremor. It took a few months to really work well

I'm on 1pill (25-100) 3 times a day. Is that the same as the dosage you are taking? Did your tremors get worse before they got better?Thanks for your help

Yes, that is generally the starting dose and yes, that is the same for me. I was diagnosed 2 years ago, My tremor was slight to begin with but after I got the diagnoses it went from a 1 to a 10 in a matter of weeks. My neurologist felt that starting C/L would help control the anxiety and therefore the tremors too. It took months before that happened. The meds made me really sick even though I started with half tabs. My tremor is under control 99% of the day. Of course excitement or anxiety can affect the tremor.

Thanks maybe I just need to give it some time.

Only through PTT surgery by FUS. 95% of my tremor is gone and I just have a very mild action tremor.

Smittybear7 profile image
Smittybear7 in reply to lenamm

Thanks is that available in Pittsburgh PA?

lenamm profile image
lenamm in reply to Smittybear7

Just in Switzerland unfortunately

Smittybear7 profile image
Smittybear7 in reply to lenamm

Glad you got good results. Not sure I could afford a trip to Switzerland and the treatment.. I am checking out FSU in the USA. Any side effects.

lenamm profile image
lenamm in reply to Smittybear7

Not for me. Be aware there is a PTT trial in the us but the one person I know who went through it had massive side effects and is worse off. It’s not the same surgery I had just the same name

Smittybear7 profile image
Smittybear7 in reply to lenamm

Thanks for sharing

kevowpd profile image
kevowpd in reply to Smittybear7

Be cautious about relying solely on people who are positive about the procedure. There was a poster on this forum that contributed regularly, that was optimistic about Swiss PTT, went and got the procedure, then posted briefly about unpleasant side effects, then stopped posting and hasn't been heard from since, at least publicly. Now, maybe everything is OK, but maybe not, too.

healthunlocked.com/user/par...

Smittybear7 profile image
Smittybear7 in reply to kevowpd

Thanks

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