I found this study intriguing. I signed up for it and was accepted. They are still enrolling if it's anybody's cup of tea.

[Sane1]

Pragmatic Cyclical Lower Extremity Exercise Trial for Parkinson's Disease

"The study is a randomized controlled clinical trial designed to examine the disease-altering capabilities of a 12 month aerobic exercise program for individuals with PD. A total of 250 individuals with PD will be randomized into 1) a home-based aerobic exercise program, or 2) a usual and customary care (UCC). Subjects in the home exercise group will receive a commercially available Peloton indoor stationary bicycle delivered to their home for a 12 month exercise period. Individuals in the UCC group will continue their current level of physical activity."

clinicaltrials.gov/ct2/show...

[OREOLU]

Hi Sane 1 since the sampling is randomized, the chances of getting into the stationary cycle exercise group is 50%,I suppose. I will like to be in this group.

[Sane1 in reply to OREOLU]

Yes. That's what I figured going in. Getting a Peloton for a year was quite an incentive. However I would be OK in a control group too as I have a good spinner bike (minus the Peloton screen and workouts) that I will use all winter anyway. I ended up in the Peloton group and am excited to start the program.

[kaypeeoh]

I've seen this before. Don't remember whether it was on this site or others where I monitor or lurk.

[Sane1 in reply to kaypeeoh]

I believe I found it "lurking" the clinical trials site.

[faridaro]

Thanks for information! However, the website states: "Motor and non-motor assessments will be conducted at the main campus of the Cleveland Clinic or the University of Utah" - so according to my understanding if you don't live close by you have to be able to travel there.

[Sane1 in reply to faridaro]

That's correct. Three trips over the year. Three days testing each (on and off meds). Need to be fairly close. Probably helps if you like biking...Lol.

[LAJ12345]

Ha, I should sign hubby up for the UCC group as he wouldn’t be bothered with trying to see if it helped. Feeling frustrated today😞

[SonarsMom]

I live in North Carolina and am part of this study. I traveled to Cleveland in August to start. I did not get into the Peleton bike group and was disappointed, but am glad I'm part of the trial because it has been pushing me to walk more. I work out about 2.5 hours each day. I also get a call from someone at the Cleveland Clinic every other week which makes me stay on the mark. It's interesting to be a part of this study and it has definitely increased my daily steps.

[Sane1 in reply to SonarsMom]

You live quite a distance from Cleveland. I am impressed that you work out 2.5 hours a day. Is there a required amount of exercise required of the control group or just continue your usual routine?

[SonarsMom]

If you are selected into the Peleton group, I believe you have to commit to 45 min 3X a week. I've been doing my 2.5 hours long before I entered this trial. I do one hour of water aerobics and 1.5 hours of Rock Steady Boxing (via Zoom) every weekday. I also walk 6,000 steps a day; I started these steps as a part of the trial, but they did not "assign" the steps; I just decided on that number.

My six grandchildren are my inspiration for this activity to combat my PD. I want to be as active as possible so I can interact with them as a 71-year old grandmother, rather than as an invalid.

[GrandmaBug]

Can we still sign up? I already go to Cleveland for another study. I wonder if they would coordinate trips, altho' three trips a year isn't bad as my daughter lives nearby. I live in Indiana.

[Sane1 in reply to GrandmaBug]

Yes enrollment is still open. You would have to discuss with the intake people about your specifics.

[GrandmaBug in reply to Sane1]

I placed a call today, left a message. Hopefully, they will call back.

[sharoncrayn]

You have to be on PD medications (sinemet, etc.), so MP or selegiline alone does not qualify. Nor does self-diagnosis. Accessibility to CC is a must.

Sharon

[Sane1 in reply to sharoncrayn]

Yes. There is as with all clinical studies a list of inclusion and exclusion criteria. This list is also included in the above URL..

[sharoncrayn in reply to Sane1]

yes, several members of the support groups I run checked into this CT many months ago. Nobody wanted to travel to Cleveland.

[JBOVERT]

I have contacted the group and will see if they reply but thanks for the info

[blogger_7]

Would they pay enough to cover my expense to fly from Florida to Utah three times?

[Sane1 in reply to blogger_7]

Obviously the geography is a limiting factor in potential study enrollment. I often search for studies based on location first.

[blogger_7 in reply to Sane1]

I have family in SL. I wouldn't mind the destination. But can you tell me how much they are paying those who participate in the study?

[Sane1 in reply to blogger_7]

I don’t believe they are paying participants but a token amount maybe 50$ per visit paid at the end (confirm with study handlers). If you are in the Peloton group you get the use of the bike and software for a year. You are given a Fitbit type of tracker with ankle strap and heart rate strap to keep.

I was drawn to the study because ....I love biking. I had been curious about the Peloton. I fit the criteria. I was fairly close by. And it was non invasive and didn’t require experimental meds (because I am not as courageous as some of you on this wonderful site). Perfect fit for me.