Parkinson’s and night time bladder problems

[truckingalong]

Parkinson’s is tough but added to that is finding answers to night time bladder issues. My husband’s tried sheaths and tubes to a bag but there are problems with air /urine push back so it has to be released most times to let the air out each time he uses it.Continence pads have leaked.... so what do we do ?. We feel a bit desperate .... not much sleep at night ...any ideas welcome please!!

[park_bear]

Has he been checked out for UTI (urinary tract infection)? Mild UTI may be livable during the day but bladder/prostate irritation looms large at night.

If there is no UTI issue, consider no liquid within two hours of bed except as necessary to take pills.

Herbs that reduce the irritation:

• Pumpkin seed extract

• Marshmallow root

• Aloe vera

• Hyaluronic acid

The last three of these coat the urinary tract.

Also, acidic foods can cause irritation.

[Hikoi]

Like people with MS we too get neurogenic bladder problems so it is finding a way to manage them as they are very unlikely to go away. There are meds you can take, a couple of which I found very good. Ask your doctor for a script for vesicare.

[truckingalong in reply to Hikoi]

Thank you so much will look into this product!

[frankaspergilus]

As park bear has said, no liquids for a few hours before bed. Especially nothing with caffeine or alcohol or anything acidy such as orange juice.

If there's nothing in the bladder when he goes to bed, there's less chance of him needing to empty it. If he does that he could well sleep better before long too as he won't be woken by the need to pee and his sleep pattern could improve a lot. And, you'll benefit in that way too.

I've read that although staying hydrated all the time is generally good for one's health, for some people, drinking many glasses of water (any liquid) a day can cause problems. It can be better to sip liquids in small quantities throughout the day rather than fill up the bladder by downing fairly large amounts in one go. This way you remain hydrated but put less pressure on an already malfunctioning bladder.

[truckingalong in reply to frankaspergilus]

Thank you - we have gone down this route and it doesn’t really solve the problem ... appreciate the suggestion though!

[Hidden]

My husband had the same problems. Our neurologist gave us a referral to a urologist he works with & who is familiar with issues arising from PD. The urologist started my husband on trospium, then added Myrbetriq, which worked for a while, then added a higher dose of tamsulosin when he was having urgency problems again. Hubby’s now able to sleep through the night most nights, otherwise just gets up once a night. Yes, it’s a lot of drugs, but it works.

[truckingalong in reply to Hidden]

Thank you thank you! Will definitely follow up on this with the docs. Fingers crossed!

[MBAnderson]

Maybe some ideas here. There are some pharmaceuticals. I take Terazosin, although I don't think it does much for me.

healthunlocked.com/parkinso....

[truckingalong in reply to MBAnderson]

Thank you ! Appreciate the suggestion !

[pwpwifekim]

You need a urologist to confirm that the issues are tremor-related. If that is the case, e might be a candidate for Botox injections in his bladder. That worked for my husband.

[truckingalong in reply to pwpwifekim]

Thank you - will definitely be seeing an urologist now!

[Millbrook]

If you look up melatonin Chartist posted massive information on the benefits. I never realised so many people here had nocturia. Art posted this.

renalandurologynews.com/hom...

My husband has had amazing improvements with melatonin even his urologist was surprised. Melatonin stops the huge muscle in the bladder from agitating to empty and improved the retention of urine. He now wakes 2-3 times a night on good nights 1-2 times. He takes 5 mg. Hope this helps you

[truckingalong in reply to Millbrook]

Many thanks will definitely check this out - so grateful!