Anyone has tried HIFU High Frequency Ultrasound for tremors? What is the approx. cost in USA? How do we get hold of a movement specialist?

[Bianhua]

Hi there to All! I am actually based in UK-England - although I have registered with healthunlocked-Parkinson movement - to virtually support my ex-husband and friend who lives (on his own) in San Pablo CA.He was diagnosed with Parkinsons recently. I want to than you all for this very helpful, well informed and heart felt community. My warm wishes to All.

[Erniediaz1018]

Likewise, thank you for being part of this community.

[Bianhua in reply to Erniediaz1018]

Thank you Ernie

[Hidden]

More information on this link:

fusfoundation.org/diseases-...

Also, look up MBAnderson, one of the senior most members of our group. He might have more information for you.

[Bianhua in reply to Hidden]

Thank you for the tip

[Hidden in reply to Bianhua]

Welcome

[MBAnderson]

Yes, the FDA has approved FUS for both PD and essential tremor and is available in the US. You or he can call your insurance company and ask them if they cover it. If not, there are about a dozen locations in the US that are conducting FUS pallidotomy trials for free. Go to the FUS foundation website or go to clinical trials.gov for locations.

[Bianhua in reply to MBAnderson]

Will look it up Very grateful

[Theyakin]

Will the US do the FUS trial on none US citizens for free ?. I was led to believe it is around $35k for one side. Is it true most neuro's will only do it one side.

Be well be strong

[Hidden in reply to Theyakin]

Nothing is free in America!

[Bianhua in reply to Hidden]

This is why we have to help each other and always keep our humanity Shame it is seldom the case in the medical system

[lenamm in reply to Theyakin]

The swiss surgery PTT is $35,000 and can be done bilaterally. The US is trialing pallidotomy which can only be done one sided.

[Bianhua in reply to Theyakin]

Good to have this information....lots to be researched Will keep strong

[Mom95]

just be careful. My neurosurgeon told me that FUS destroys brain cells so if they dont hit the right cells you have then lost brain cells that cant be replaced, He says its too risky for the brain but useful in other areas.

[Bianhua in reply to Mom95]

Thank you for the inf Mom95 ....

[Trixiedee in reply to Mom95]

That’s why they use Ultrasound to focus on the exact area of the brain.