Crying “Uncle”

[katherinecompton22]

I’m 66, diagnosed in 2015. Retired from a great nursing position in March. Joined HU in 2015, but have been mainly a reader, seldom posting. Since many of life’s challenges have seemed easy for me, i thought i’d tiptoe/glide through this PD thing with ease and grace. OMG, there is nothing easy or graceful about this; a glimmer of muscle strength in my legs will disappear overnight if I miss exercising. And never did I anticipate the often painful effort needed to just stand up straight. I read your posts and appreciate not only the hard work you all do, but also your willingness to share information, experiences and support.

[chartist]

katherinecompton22,

I agree, this is a great place for support and information about most aspects of PD and when you figure the combined knowledge and experience of the members, just about unbeatable in terms of adjunctive support & advice as well as emotional support! It is rare that the newest PD related news is not seen here shortly after it is released. Such a huge knowledge base right at the convenience of your finger tips and computer!

You never know when a contribution you make may be read by someone who was looking for that exact information or your question may be read by someone who has experienced similar and has an answer ready and waiting! 😊👏😊

It has to be good to keep you here since 2015, wouldn't you agree?😊

Art

[katherinecompton22 in reply to chartist]

Absolutely!

[GymBag]

Welcome to the posting pit, you will need a bit of a sense of humor here and being a nurse you probably have a good one. Funny thing about nurses, you will always be one, retired or not you are a nurse for ever. Posting and contributing to the conversation can be very therapeutic. We need young people, like you, with medical experience and now that we know you will probably be inundated with questions . Too late cats out , Enjoy it.

[Aleagles]

Have you spoken to anyone Re DBS? Also SSRI?

[katherinecompton22 in reply to Aleagles]

I do take Celexa and have for years (with increasing dose recently). I can stay on top of muscle pain and rigidity if I work like a dog. Physical therapists pointed out how weak core muscles, quadriceps were, and with 4 months of strengthening them and working on posture, am feeling human again. On Rytary and selegiline, B1, lots of naturopathic anti-inflammatories which help with muscle and OA pain. NP mentioned DBS last visit - I'll see the physician next week and ask more questions. Not sure I'm ready for it. Thank you so much for responding!

[Aleagles]

What ever exercise you can do in a group for moral support?

[katherinecompton22 in reply to Aleagles]

You are so right to suggest. A couple of years ago I joined a boxing/cardio class. It was so hard, but I loved the comradery and support, and I felt so much better. Stopped because of severe OA in my hands, commute needed, and the cost. I will scout out local opportunities.

[GymBag]

"I was mainly a psych nurse - not all that helpful! "

your kidding right

There is a growing need for you, just read some of the posts

PD is just in your head you know

its the effects that are everywhere.

[Kwinholt]

Hi there . Welcome . I was diagnosed in 2013 and yes the unforgiving pain and coming from an ultra runner, to not have control over what my body does is very hard to except. Knowing that there are others out there that understand is so comforting. I ran into someone I hadn’t seen in a while and I told her about my PD and her response was, oh I have a friend with it and you live just fine with PD. My response was , F you and no you don’t “just live fine” with PD. So I appreciate each and every one of you out there that “get it”. Take care. Karen