Newest installment from Fred Phillips. On anxiety and not being able to move.

[parkie13]

fredphillips.wordpress.com/...

[Hidden]

Mary,

About 4 months ago I invited him to join this forum after reading his lengthy history on his blog, which to me has been a steady decline in spite of the multitude of positive type approaches he has applied to himself. He wrote me back a couple of months later and said he would check it out, but that was all he ever said.

He has that thing about always being in fight or flight mode and is convinced that is the cause of his issues and he seems intent on trying to negate that possible cause, but I look at the length of time he has been working toward that end and it seems like he makes little progress, but overall the trend seems to be down.

When I wrote him, my thinking was that HDT might allow him to continue his experiments in eliminating his fight or flight theory of PD indefinitely. We all have to travel through life as we see fit!

Art

[Xenos in reply to Hidden]

Well stated Art. Fred is a great guy, very brave and a good writer (he writes novels). I think the recent events will be a tipping point for the best in his journey.

[parkie13 in reply to Hidden]

However, he is on levodopa medication now. I bet we're going to start seeing different post from now on where he is doing better. I wish him all the best.

[Hikoi]

At last, someone who really has Parkinsons facing the reality of it though he does kind of play up the anxiety and play down the use of meds. He doesnt mention the high incidence of anxiety in PD.

[jeeves19]

He’s always struck me as somewhat naive both in what he believes but more so in his willingness to entertain and embrace pedlars of nonsense.

[GymBag]

Jeeves , I believe you are correct.

The 5 stages of grief

Denial

Anger

Bargaining

Depression

Acceptance

This guy will spend a life time to get to the 5th stage , too bad.

ca.video.search.yahoo.com/s...

[NRyan]

With or without Levadopa....we are all on the downward slide. Some fast, some slow. I commend Fred for trying everything he can to take control or perceived control over this sucky disease and his downward slide. I call it strength, hope and fortitude. There is no cure, there is only slowing it down as much as possible.....waiting, waiting for something to halt it in its tracks. Fred hasn't waited, he has acted. I am proud of him and hope I have 1/8 of the strength to try as hard as he has to remove himself from the clutches of this terrible affliction. Support, not judgement is what we all need. Peace to all.

[Hikoi]

Yep we are in a no win situation. Our winning is making the best of what is served to us showing courage, fortitude and dare I say acceptance. That doesn't mean giving up but having realistic optomism. Promulgating unreal expectations is unhelpful. But i guess it is ‘buyer beware’.

[NRyan]

I believe Fred has accepted the fact that he has PD. He is fighting like hell because he knows he has it. Trying to find an underlying cause/remedy is considered "unreal expectations" on one hand, but scientific research (that we are all counting on) on the other? Interesting. My mom is fighting cancer right now, she has accepted she has cancer, but would like to live as long as possible pain-free. She is trying things that others would scoff at......who cares? It's her life, I'm not going to stand in judgment. Everyone with a chronic/degenerative disease has this process to go through. I listen to LOTS of people not willing to do what they can to help themselves....relying on medicine to alleviate symptoms only. Kudos to Fred and everyone else trying to take their health fate into their own hands. Keep on keepin' on!

[parkie13]

Yes, all the mainstream research is barking up wrong tree. There is no idiopathy , there is always a cause.

I believe it is a viral infection.