former Marine with Parkinson’s weeps as his tremor symptoms improve dramatically right in front of his eyes.

[Farooqji]

"So incredible, and so moving. A former Marine with Parkinson’s weeps as his tremor symptoms improve dramatically right in front of his eyes. Only science gives us true miracles. h/t #DBS t.co/g716cpM3Ti" / Twitter] is good,have a look at it!

[Trixiedee]

DBS is hardly a miracle. Several hours of brain surgery and the possibility of serious side effects.

[Farooqji in reply to Trixiedee]

to some extent yes. But for those whose symptoms especially tremors make life impossible, it's a miracle

Technological advances have made it quite a safe procedure nowadays

[Trixiedee in reply to Farooqji]

I’m in a DBS group and there are lots of people who have trouble with speech, balance and walking afterwards.

[Farooqji in reply to Trixiedee]

Don't know whether the skill of surgeon makes a difference or it varies from individual to individual

[park_bear in reply to Trixiedee]

Thanks for sharing that. MDs tend to omit any warning about treatment downsides.

[alexask]

I just think if he had taken B1 and/or Mannitol earlier he would never have gotten to that state that required DBS

[Farooqji in reply to alexask]

really! Are you getting some benefit from these?

[alexask in reply to Farooqji]

Haven't really noticed an effect with B1. Just 3 grams of Mannitol in coffee and exercise are enough for me.

[Trixiedee in reply to alexask]

How long have you had Parkinson’s Alex?

[alexask in reply to Trixiedee]

Have had symptoms for 2 years, but mostly resolved by Mannitol. Haven't had a formal diagnosis - see my profile.. But if you have a look at alaynedellow and others on here who also benefitted. I only take about 3 grams in coffee in the morning.

[healthabc in reply to alexask]

yes tell us more!

[Hidden in reply to alexask]

what is Mannitol?

[alexask in reply to Hidden]

A sugar substitute.

parkinsonsdisease.net/resea...

[KERRINGTON in reply to alexask]

Yes, wd love to know how long you've had PD symptoms, and how you schedule your mannitol. Every bit of info helps !

[alaynedellow in reply to KERRINGTON]

Syncolein. Com. All info there

[Fed1000 in reply to alexask]

Hi alexask, are you using pure mannitol or mixed with other supplements? What is the brand? Where do you buy it? Thank you so much.

[alaynedellow in reply to Fed1000]

Syncolein.com is website. All info there

[JayPwP in reply to alaynedellow]

Other than syncolein, what options are there for mannitol purchase and consumption? Any specific variant or suggestions on what to order?

[alaynedellow in reply to JayPwP]

If you look on syncolein website there is only one product all self explanatory.

[JayPwP in reply to alaynedellow]

I looked at the website. Couldn't figure out if they deliver to India

[JayPwP in reply to JayPwP]

Is this ok?

amazon.in/dp/B07G5DLZJF/ref...

[alaynedellow in reply to JayPwP]

Email n ask it tiny company

[AmyLindy]

Curious: this man had a different apparatus? Anyone know what it was called? Perhaps not invasive as DBS?

[Trixiedee in reply to AmyLindy]

It’s DBS.

[AmyLindy in reply to Trixiedee]

But why the harness? Is this an older video and DBS model? I thought the DBS didn’t require apparatus that is quite that bulky or visible? Maybe this is an initial sizing/testing phase?

[Trixiedee in reply to AmyLindy]

I think it’s to recharge the battery.