Anyone out there who had DBS for 10 years... - Cure Parkinson's

Cure Parkinson's

25,550 members26,870 posts

Anyone out there who had DBS for 10 years or more

Xabojuro2 profile image
4 Replies

I'm hearing different views about the longevity of DBS. has this been covered before and can anyone out there who had DBS for more than 10 years comment / share his or her views?

Written by
Xabojuro2 profile image
Xabojuro2
To view profiles and participate in discussions please or .
Read more about...
4 Replies
3Fishies profile image
3Fishies

I have a friend who did DBS 3 times... the first time it worked okay. Then after 5 years they had to go in, I think batteries or infection? So they took it out.

The third try, he had an issue with his blood pressure, he almost died, spent 2 years in rehab curled into a ball, then regained ability somewhat, so they decided not to do it.

Now he’s been home a year.

The span on this I think was about 7 years.

Xabojuro2 profile image
Xabojuro2 in reply to 3Fishies

Scary. I wonder if this case an exception or the norm.

Geauxgirl45 profile image
Geauxgirl45

My husband had DBS done 11and 1/2 years ago. Great results.

ConnieD profile image
ConnieD in reply to Geauxgirl45

Can you let our community know how he was before the surgery and after, what changes he has had. I’ve read some people develop speech or balance issues after surgery. Has he had any negative side effects? Thank you!!!

You may also like...

ETTERUS, VIVACE 1017 AND HIDDEN. HOW ARE YOU FEELING, SEVEN OR EIGHT YEARS POST DBS SURGERY?

retired PT had DBS done at a hospital in Oregon Portland, according to your post 7 years ago, you...

I’m scheduled to have DBS surgery February 29 - if you have had DBS, is there anything you wish you‘d known beforehand?

input from members of this community who have had the experience of DBS surgery. Thank you in...

What improvements can we anticipate within 10-15 years?

20 + years out. Meds to reduce dyskinesia are being trialed according to MJFF. If dyskinesia can...

DBS: Medtronic question re. voice

As many of you know I had DBS last August. Didn’t reverse my symptoms 5 years as was touted by my...

apomorphine, anyone on this?

injection. is anyone using this and has it made a difference i know everyone is different just...