My doctor started me on a low dose of Sinamet and I would say my tremors are out of control, and tonight at work, my legs feel like they want to shake to o!. At first dose, I felt a difference but for the last four or five days they have gotten horrible. I think it's s side effect and not a good one. I would rather have my old tremor back than this. Will call Dr. In morning, suggestions?
Shakes: My doctor started me on a low dose... - Cure Parkinson's
Shakes
34 Replies
•
Yes, you're smart to call your doctor. Hope it helps!
"I would rather have my old tremor back than this"
This must be the quote of the month 
Maybe the low dose is not low enough. For how long you have PD and what that low dose is?
• in reply toion_ion
I prob have had it for two years, diagnosed two weeks ago. 25mg
It could be early dyskinesia. It can happen right away, contrary to "common wisdom." Talking to your doctor is the best course.
• in reply toJuliegrace
What is that?
Juliegrace• in reply to
It is a side effect of l-dopa.
• in reply toJuliegrace
Thank you. I called my Dr., Left a message that it was out of control and I wouldn't be taking that any more. I had an appt scheduled for next week anyway. I have had my tremors for about two years, just got the meds and the whatever's started about two days later. The first couple of doses seemed to help and then wham!
Xenos• in reply to
If you withdraw, do it as gradually as possible. It's safer.
A low dose of Sinemet ( 25/100) is the only med I have taken for
five years, still only got slight hand tremors, now getting a lot more
freezing and more of a shuffle than a nice walk.
• in reply toramondo4
That is what I was given but apparently not what was good for me. Horrible, I didn't take my doses for today and already much better. Have appt the ninth, hopefully let the dose of possible or find something else.
I went down that road. I lost 6 months of my life. I was literally trembling to my next hit of medication. Life was hell. I had walked into my Neurologist's office with a tremor and now I was a quivering mess with no energy. I asked to go off medication which I did slowly. I was off all medication for 2 weeks when I visited my Neurologist again. He couldn't believe how good I was. I told him I wanted a little bit of something. I am now on 1mg of Azilect per day, apparently the only thing proven to slow the progress, and 50mg of Madopar 3 times per day. I was on 1000 mg of Stalevo/day after initially being on Sinemet. Trust your own instincts. Good luck.
The neurologist will have to, probably, figure out what medicine and dosage would work best for you. When I first went to my neurologist, I went every 2 to 3 weeks for about 4 times, until my doctor was pleased that the tremors were reduced enough that they weren't affecting my daily life too much. It takes a while, and each patient is different. You are right in contacting your Dr. if you seem to have problems, after a few days of medical treatment. When I felt my medicine wasn't working well, I called the neurologist, and he got me in, right away.
• in reply toddmagee1
I haven't had the chance to go to neurologist yet, have be referred and I have no insurance! I had no relied from the tremors except at home resting, still felt pins and needles tho. I would say that from yesterday to today 60 precent better. Still have my tremors and they have progressed this year, I just know that want the meds for me.
Thanks 😀
• in reply to
Sorry about the grammar! I hope you can decipher it
ddmagee1• in reply to
That's always a problem-no insurance. So sorry to hear that! After I retired, my employer dropped all my insurance, so I know what you mean. My insurance premiums are high. I have no dental insurance and recently had to have $12,000 worth of dental work done. I understand what you mean. I get pins and needles in both feet and hands, but at least the right dosage of Sinemet has gotten my testing and essential tremors under control. I hope you can get a referral and get the help you need. Perhaps the doctor would know of a way you could get financial aid for insurance. My doctor was able to get me huge discounts on prescriptions.
• in reply toddmagee1
I get a discount on my meds! I have my daughter and grandkids in town this week, so after they go back, I will make appt at clinic with an insurance helper lady! Lol
Thank you so much for your help. It's all a bit overwhelming and then when my body started freaking out, and I didn't do anything, just kept on taking it. Last night at work was it, I was done.. I don't have dental either and had work done a few years ago that I am still paying off.
ddmagee1• in reply to
Looks like we both have had lots of problems. I'll be paying on that dental bill for a while, because I had to take out a loan. Working with tremors is a real bummer, for sure! Wishing you the best!!
• in reply to
You need to be diagnosed by a movement disorder neurologist. If your tremors get better when your limbs are at rest then it may be that you do not have PD but essential tremor. The tremors that are indicative of OD are resting tremors.
I would come off the Sinamet straight away. It does nothing to slow down the progression of your Pd and if it made the shakes worse then stop taking it!
Look at my PROFILE and see what I did to overcome most of my Pd symptoms. It hasn't taken my tremors away but I have now lived a normal life, medication-free since 2002.
Look at me website reverseparkinsons.net and contact me for more information, which will be provided, at no charge.
What do you mean by low dose? It sounds like you are taking too much or more than your body needs. The amount may need to be adjusted.
• in reply toJocee
The Dr put me on the lowest dose. 25/100. This all new to me and so I didn't read all the side effects.
• in reply toJocee
My nose is numb, I dislike this process.
It's important that you know whether you're dealing with dyskinesia or tremor. See this article everydayhealth.com/hs/parki...
Regarding Sinemet, I still take it but for me "the more I take the more I shake!" Got dyskinesia from it so I cut back. I STARTED TAKING CBD (HEMP) OIL for the first time today. I am hoping for some positive results with my leg pain, anxiety and depression.
Anybody else trying it?
• in reply toktbate
Let me know how it goes, hope it works!
Tried it, it didn’t work for me but I only used it for thirty days...my son says I should have tried it a little longer but it’s expensive so o stopped. I hope it works for you.
My wife going through exactly the same thing. Doctors in denial. This response is not in their cookbook of treatment. Don't feel alone.
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