About two months back I started my dad on a low dose of mucuna, but saw no improvement so about a month and a half he went onto co-beneldopa (madopar)
In that time, he hasn't really improved. Still bent, head down, shuffles, lack of energy, says his muscles ache still, still hand and jaw tremour. The GP upped his dose to six a day but still nowt.
So I've seen people post about 'atypical parkinsons' and even misdiagnosis. Should he have shown some signs of improvement by now on the dopamine?
Figuring out the proper diagnosis is pretty sticky sometimes. I Remember reading in one of Michael Okun's books how about a situation with someone where he was giving someone a test dose of carbidopa/levodopa and didn't get to a breakthrough until 12 tablets. I am in no way advocating something like that but the reality is, it's highly variable. If you suspect some kind of atypical presentation, I STRONGLY urge you to find a movement disorders specialist for a consult. It's simply going to be more complicated and something that I wouldn't leave to a general neurologist.BTW, how long has your father had Parkinson's?
He was diagnosed with 'probable' Parkinsons in 2009. He's managed on Azilect/Rasagaline, Kemadrin (procyladine hydrochloride) and pramipexole, but obviously degraded over the years. Two years ago he lost ability to stand up straight. He's never had any tests to confirm Parkinsons, but he has the hand tremour, shuffling gait symptoms.
Hello Dee1980
What dose is he taking. 50/12.5 or 100/25
I take Sinemet (Carbadopa Levadopa ) 25/100 and 50/100
I take 3 25/100 and 1 50/200 every 4 hours 6 times a day (3000 mg a day).
Contact his Doctor and ask him how to increase his meds to see if a higher dose would help. I have read that 2000 mg levadopa is the cutoff. I would not stop until he shows some improvement or 2000 mg a day.
He should be seeing a neurologist at least once year - his GP is unlikely to know much about Parkinsons. But his meds sound reasonable. Can he exercise?
This might help: bcm.edu/healthcare/care-cen...
B1 and anti anxiety pills
Doubling the amount of levadopa??
Newbie Question
Is there such a thing as slow release co beneldopa?
Taking Madopar
