Unmatched Information!

[Don_oregon_duck]

I don't know where I can go to get such great information and advice and feel very comfortable about it, than this Health Unlocked Parkinson's community. I sure hope the other HU communities are as knowledgeable, friendly and kind as this group is, but I don't know that.

I do know how our great circle of support, really gives me piece of mind that about every treatment program available, for Parkinsons', is represented here.

Think about this. I tell my wife, I am going to post my question on HU Parkinsons' asking if anyone is treating their health issue like I am, to see if I am normal. 50 people respond, each with the solution that works for them and none of them are like mine. I turn to my wife and say, "I am normal. I am just like every one else. Nobody treats their issues like I do." That certainly makes having this disease a little more bearable, don't you think?

[Hidden]

The only drawback I see here is the high rate of information flowing through HU.......it is so fast sometimes that I miss a lot of great posts!

Art

[Don_oregon_duck in reply to Hidden]

The ones you missed probably would not have worked for you anyway. That is why you were directed to the ones you did read. Hee hee

[jeeves19]

Anther frustration is that we learn so much together then try to explain or share with our clinicians but they just stare at you as if you’re talking another language! My neuro exclaimed in my last visit that exercise could definitely not reverse elements of the disease despite many anecdotal tales and academic studies suggesting otherwise.

[Don_oregon_duck]

Do not forget. The doctors must strictly follow the approved treatments as allowed by the FDA. And the FDA obtains the clinical trial findings from the drug companies that sponsor them. They can't listen to you and me, at least officially they can't. Many begin to see the trap they are in and try to find ways to use alternative treatment programs. If a drug company paid for a study to determine if exercise helps, they, most likely, would find that it does, then your neuro could agree with you.

[Springfield78]

So grateful to all of you! Supportive info from around the world...thank you!