When your C/L wears OFF do you feel anxi... - Cure Parkinson's

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When your C/L wears OFF do you feel anxiety or is it caused by a different factor ?

moparkie715 profile image
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I am currently taking 1 C/L 3x per day. One every 5 hours. However, about 4 hrs after taking my C/L i start ot not feel well. I have tried eating more, taking my meds after 4 hours and increasing the dosage to 1 1/2 but no change or improvement. . I dont really feel an OFF symptom as i really don't feel an ON period. Today i tried decreasing the dosage to 1/2 a pill to see if i can get rid of my yukky anxious type feeling. I survived thrugh the day but i took the whole pill at 6:30pm. I think no matter what i am a mess by 6pm. Does anybody else have this. My legs have a very difficult time walking.

i am on venlaxafine for anxiety and wondering if increasing my dose would help or would going off completely off of the c/l help my anxiety.

MY biggest complaint is imbalance and Freezing of gait. neither of these improve with c/l.

any suggestion as to how to get rid of these anxious / feel sick feeling?

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moparkie715
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5 Replies

1.5g thiamin HCL twice a day. You may expect results over a period of one to four months

moparkie715 profile image
moparkie715 in reply to

RoyPop, in what way does the thiamine HCL help ?

in reply tomoparkie715

Thiamin HCL at 2g in the morning and again in the afternoon, to use a common phrase, has given my life back to me. Search HU/Parkinson ( this site ) and you will find testimony of others. Also see my profile.

Bailey_Texas profile image
Bailey_Texas

Hello moparkie715

You don't say what size C/L you take but i will assume it to be 25/100. The answer to your question is yes C/L can lead to being anxious by the end of the day but feeling anxious or bad by the end of the day is very common among PD people.Your day is wearing down you are naturally tired. About what and when you eat. Avoid large meals eat small amounts 6 times a day. Eat 2 hours before or after taking C/L. . You say that the C/L does not help with your PD but you say you took 1/2 pill for a day but had to take the whole pill at 6:30. What does the C/L do for you. MY suggestion for you is to contact your doctor and see if you can increase your dose of C/L to every 4 hours and 5 times a day. This way you have a more consistent amount of C/L in your system. THen i would ask to increase the amount to whatever level you can deal with without too many side effects. Side effects for me at first could be intimidating but i hung in and they were less and less over time. I now take 3000 mg a day. This is a very large amount and you will most likely never use that much. I am 64 12 years with pd and with the C/L and ropininrol and gamapentin i am symptom free most days.

Hikoi profile image
Hikoi

Anxiety and low mood is a well known off symptom some people experience. Don't believe Carb/lev cause it. Rather lack of carb/lev ie dopamine does.

I heard that carb/lev can sometimes help balance and freezing gate. But thats not your experience ?

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