Diagnosis of PD

[Ianfrizell]

Hi all

This is a link to my vlog about diagnosis of PD.

youtube.com/watch?v=PHBdU0u...(Not working as expected?)

Cheers,

Ian

[M1tz1]

Thank you, Ian. I appreciate your vlogs and the effort that goes into them.

[Kia17]

Thanks Ian for the info about the PD diagnosis.

[MehmetKutlu]

Dear Ian,

I was diagnosed with PD last year. It started with various symptoms of episodic dystonia, such as blepharospasm, involuntary contractions of my right shoulder and cervical muscles, sometimes accompanied by a 'pisa syndrome' attack. I can definitely say that this dystonia proved much more disturbing than my classical parkinsonian symptoms, which are rather mild. Worse, except for the blepharospasm, neither drugs like Requip and rasagiline, nor botox improved the dystonia. Because of the dystonia, I can almost never walk anywhere, I can only take a cab. It has a very nasty tendency to appear when I am out. Is there any way to alleviate this a little bit ?

Thank you very much.

[Ianfrizell in reply to MehmetKutlu]

Hi

Sorry to hear about your dystonia - very uncomfortable. My DBS helps my dystonia, but I only have it in my feet and it is much milder than yours! Also cannabis helps me, but there's no guarantee that DBS or cannabis would help you - we're all different! Obviously DBS would be a big step, but you could try a little cannabis...

Cheers

Ian

[MehmetKutlu in reply to Ianfrizell]

Thanks a lot, Ian. This may be helpful. Let me also say that your blogs have been an excellent source of PD knowledge for me. Concise, yet very informative.

[JohnPepper]

Hi Ian

I admire your effort to help others. May I ask you if you have tried doing Fast Walking? If so, has it helped you? I was in a much worse state than you appear to be and it has helped me get off all Pd medication and I am now living a fairly 'Normal' life again. If you would like to contact me then please do. Look at my website reversparkinsonsnet and send me an email.

[Ianfrizell in reply to JohnPepper]

Hi John

I haven't tried fast walking (I have enough trouble slow walking!). I'm about to try forced exercise - will let you know if that's a success.

Will take a look at your website when I get a chance!

Cheers,

Ian