Why do we some days feel that we have no PD? - Cure Parkinson's

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Why do we some days feel that we have no PD?

Kia17 profile image
15 Replies

Why do we some days feel that we have no PD?

Please share your thoughts here,

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Kia17 profile image
Kia17
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15 Replies
Xenos profile image
Xenos

I've had hours like you say, never a full day...

kbc1 profile image
kbc1 in reply toXenos

Ditto

swva profile image
swva in reply toXenos

Same here. Only hours.

sankar003 profile image
sankar003 in reply toswva

I feel like that on days where I have PD compliant, wholefood diet and am able to exercise properly.

Kia17 profile image
Kia17 in reply tosankar003

Do you take any medications? When your PD diagnosed?

sankar003 profile image
sankar003 in reply toKia17

diagnosed in 2012 and I am on 3 200mg levodopa a day.

Gioc profile image
Gioc

those are the days that I look at Italian politics. :-)

GymBag profile image
GymBag

I pretty much have PD 24 hrs a day, 7 days a week , and today only has 23 hours. Whats all this "WE " stuff.

Enjoy it . Those days slowly disappear.

johntPM profile image
johntPM

I sometimes have the feeling of being symptomless, but now (12 years post diagnosis) this only lasts for a few minutes at a time. Possible reasons:

- it's just a perception of wellness, rather than real wellness. Your expectations change with time, you feel well relative to your new "you", not your old "you". You tune out some of the symptoms.

- a coincidence of favourable factors. Your drugs are working. Your remaining endogenous dopamine production is doing its best. And the wind is blowing you along.

- a placebo effect. For some reason you think it will be a good day, so it is.

John

4000Nights profile image
4000Nights

I often can go all day without noting symptoms. But as soon as I think "Gee... I have no symptoms today" and go looking for them, e.g., hold my hand to see if I see a tremor or try to tap my foot,...... yep it is still there.

But obviously my (your) meds and exercise program is working so don't go looking and don't ask why. Just keep on doing what you are doing and enjoy the 'blessed' day.

Kia17 profile image
Kia17 in reply to4000Nights

Do you take any medications?

4000Nights profile image
4000Nights in reply toKia17

Meds are Sinemet (Carb/Levo tab23-100) 3 times a day for symptoms.

Azilect to slow progression which has been barely noticeable in the 5 years since diagnosis.

Lionore profile image
Lionore

Attitude is everything, and it helps to focus on self care and other life issues. I don’t think about PD on good days except when it’s time to take my Sinemet. Having said that, I’m three years post diagnosis and couldn’t begin to know what it’s like to have had PD for 15 years or more. None of us mortals know the future so worrying about it makes no sense. I try to recite my gratitude list every day.

ddmagee1 profile image
ddmagee1

About 8 years ago, I felt that way, now, not so much. Enjoy your good days to the fullest! I do not have any good days anymore. Some days are better than others, but I have some PD symptoms and problems all the time now, due to progression of the disease to all limbs, and the autonomic system is now involved.

mleec profile image
mleec

I am not on meds yet, but rarely feel like I do not have PD. As soon as I get up to walk, I am aware, I am aware as soon as I wake up or get dressed or try to change my grandson's diaper. Trying to pass out papers to my students. Everything is more difficult. I do find that if I take my time to cook ( always been a joy), I can forget for a moment. The best thing about PD, is that it is forcing me to live in the moment. Small blessings. :)

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