Some days I HATE !@#$% PD

[mktbob55]

Today is one of them

[12stargate]

Dear Bob;

I hear you and I understand!

However, hating anything will make it worse!!

Here is what I do.

When I catch myself feeling that way or in fear or depression, I affirm 'I am healthy, wealthy, happy and wise."

I say this over and over again!!

Why? It starts to make you feel better!

How?

Check out this video:

youtube.com/watch?v=8l2nvTv...(Not working as expected?)

Love and hugs from Eva G

[laglag in reply to 12stargate]

Eva,

You know just the right things to say.

Thanks!

[michaela13 in reply to 12stargate]

Great video! Thank you.

[Dap1948]

I respect Eva's reply but would like to present another viewpoint... IT IS OK TO FEEL LIKE THAT. Emotions and reactions are far ranging. We don't always feel happy and grateful, and feeling fed up with having PD is very very understandable. Emotions shouldn't be bottled up. Unexpressed sorrow and grief can cause its own problems. So rant, rave and cry. Get it out. You have the permission of all those of us who have felt like you. You will feel so much better after you've expressed your feelings I promise.

[12stargate in reply to Dap1948]

Dear Dap;

I agree with you!!

Wholeheartedly!!

What I was trying to express, yes do that, just be sure you don't stay there.

Hugs and love from Eva G

[Beckey]

I hear you, Bob. Today for me has been a good day, but yesterday my symptoms seemed more severe than usual and my morale was in the tank. On days like that, I'm so grateful for this group -- and also for the monthly exercise/education group I joined. It's just an upper to connect with people who are more or less in the same boat.

[mktbob55]

Just a bad day yesterday. Nothing terminal ;-] Nice to have a place to say it.

Thanks to all

[margie]

We seem to all have feelings that become a negative mess- anger, self pity- Why me?I went through that, but I have many problems with my health, I couldn't change what was happening to my body, but I decided I was wasting all of that energy of negative. I decided I will fight this by telling myself- I am a fighter and I will not let my feelings rule me. I exercise and meditate thinking positive thoughts, through this I learned to feel positive, and I saw that by doing this, I am in control and found that as each day passes I can do a little bit more, with my body. Yes I am in pain 24 hours each day, but exercise helps and of course taking my medication. ( I do not take pain medicine. now- I may need it in the future.) I have had a stroke, paralyzed on my left side, through therapy of all kinds for a year, I am back to normal. I have PD with dystonia of the feet and calves. I also have hardening of the arteries in my entire brain. Life is precious and I will not give in . You are worth it. So work at feeling good about yourself. It takes time, but you will one day be glad that you did it.You do not have to be religious to meditate. I am. Just relax your brain and think of good times and good thoughts. I care as many people do.

[12stargate]

Margie:

Brilliantly said!!!

Hugs, Eva

[Hidden]

Bob, I completely understand where you are coming from. I have lots of days when I find I simply don't want to deal with the new normal......and not knowing "how I am going to feel today" every morning. But as you said, it's not terminal!

[Cbauer in reply to Hidden]

Lately I've been kind of down about how my body feels. Thankfully I have a sweetheart who can find humor when I most need it. In addition to PD I have been dealing with a case of the shingles. He suggested that it would be a good time to become a roofer now that I have shingles as well as shakes. When I finally quit laughing, I felt much better.

[guitarman56]

I was 'checking out" the first couple of years after I was diagnosed. I caught myself giving in to the disease and letting it define me. I was fortunate to have access to a great retirement pension, so I elected to retire. After moving the KY from CA to simplify life, I dove into the music scene, taking guitar lessons to improve my method, and found a whole new side of my life I would never have tapped into if not for my diagnosis. Every day above ground is a good day, and when I have those down days I pick up my guitar and no matter what sound comes out of it, I am returned to that positive state of grace.

Everyone has a passion. That passion, when tapped into, transports you to where you belong. Find your passion. It doesn't matter if you are proficient at it as long as it allows you to express yourself to yourself (if that makes sense). Even wood working is not off the table if you follow safety practices.

Anything possible if you accept your best effort as success. Most of the musicians I play with know I have PD. None of the strangers who watch me play seem to know or care. I make mistakes, some of them due to tremor or bradykenesia; some of them due to my lack of talent. But I do it anyway as it helps my soul. And I make other people happy at the same time.

[Blue-jeans]

I totally *$#@! understand, and sympathise