Night tremors

I suffer from tremors for most of the night in bed, my whole body feels like it's vibrating, does anyone else have this? Feel really shattered during the next day.

[ge1shh]

I hope someone replies to you soon who has experience of the same. I don't have that - I just wonder if you are currently on any medication which should help reduce tremors?

[Hidden in reply to ge1shh]

I have a prescription for Madopar but have not started taking it yet.

[ge1shh in reply to Hidden]

If the tremors are causing a problem and making you tired, I think it is worth trying the Madopar. It should help, but takes a few weeks to get the full benefit.

[Hidden in reply to ge1shh]

Thanks for your advice. I am seriously considering the medication now.

[BUZZ1397 in reply to Hidden]

Good move Parkinson’s is a chronic condition except it will require 24 seven treatment for the rest of your life that’s just the way it is

[Kevin51]

Hi. My tremors get worse with stress. Sleep hygiene helps me to be sure I will eventually relax and sleep even though the tremors are often bad as I go to bed. CBD oil helps a little.

[twotutts42]

I have recently had the same problems, awake most of the night with tremor and leg and feet pain. I am on madopar and have been on it a few years now and has been very good. I am now taking 1 to 2 madopar before I go to bed and it seems to be helping, have had 3 quite good sleeps.

I would try the Madopar if it’s been prescribed for you, why suffer if you don’t have to. I was adamant that I was not going to up my dose, the only one who suffered was me.

I can empathise with you how awful you feel through the day. Problem is tiredness isn’t good for symptoms either. Try some and see if it makes a difference you have nothing to lose and everything to gain.

Good Luck and Best Wishes

Twotutts42

[aloha24]

Hi. so sorry to hear you are going through this. I'm in the US and have never heard of Madopar. I do not have PD but joined this site to help my sister who is into her 3rd year since being diagnosed. She has told me she gets these "inside tremors" also. With all the scares about opioids, the anti anxiety Klonipin seems to help her. But if you trust your doctor, I would give that drug a try. It's too bad it takes so long to work.

Aloha

[CJBunton1960]

Hello , my husband has PD and. his night tremors are getting very bad , and has been taking Madopar for 6 months but no change .

[Hidden]

Thanks for your reply. Sorry to hear that your husband has had no improvement with Madopar. It seems like a bit of a lottery to find suitable medication for this awful disease.

[Lincpolio]

My husband had similar over a year ago and insisted that the electricity of our electric bed was the cause and made me turn the beds [so mine was turned off as well] every time he got in and out of the bed.

He had a 55 hour birthday from all medication when he was admitted on a Friday afternoon about three months ago.... Yes Friday afternoon with possible bowel blockage again.... and as the hours went on with no medications and the only symptom was rigidity... I asked why do we need to go back on all the medication he was on... Cant we go slowly and see what he needs. We refused Neupro patches as we had proved a bad reaction to them when used lastime.... he was given Madopar liquid but when going onto capsules he only had an hour movement.. so we asked please please to go back on the Stalevo....

We did that and did not then take the Seroquel maintenance dose he had been on for nine years.... 50mg. He also did not restart the one Amantadine... 100mg

He did later restart the one 2mg Trihexyphennidyl as we found it on Google as a treatment for the excessive sweating and saliva he had all the time in hospital....

He has not had the vibrations that he thought were the electricity supply anymore....

We are all different so it is difficult to say ... he has been on dopamine since the day he was wrongly diagnosed with Cortical Basal Ganglionic Degeneration January 2001 when he was given Sinemet. His contracted left arm opened up within 24 hours so when he went back at two weeks his diagnosis was changed to Parkinsons ....

Hope the info of interest...