Not Parkinson's but I need answers - Cure Parkinson's

Cure Parkinson's

26,582 members27,897 posts

Not Parkinson's but I need answers

Jessnhann02 profile image
5 Replies

About 9 years ago I began to develop a tremor. I eventually got around to seeing a neurologist in 2013. After MRI's in Syracuse they told me I had a fragment in my cerebellum and that was the cause. They tried medicating my tremors with no results. Along side tremors I had horrible headaches and the tremor began to spread. January 2017 I traveled to the movement center in Rochester. By this time my tremors were in my neck and legs. Descending stairs an issue. Loss of balance when my eyes are closed. HEADACHES. MRI'S detect white matter on the brain as well as dark matter. Lesions and iron accumulation. Spinal tap popped positive for Ms. Apparently they don't think that's what it is. Genetic testing showed it isn't nbia. Running 2nd round of genetic testing as we speak. I'm now developing lumps. One on my neck and one in my lung. I cannot urinate to save my life! I'm always in pain. Medicine doesn't work. For the life of me I cannot figure out what this is! I get progressively worse right before I menstruate every month. I'm losing my memory. I cannot stand or sit for any length of time. I can barely feed myself and I have to drink everything through a straw. I choke on fluid multiple times a day. I haven't worked in a year. I'm 34 and disintegrating at a rapid rate. Any feedback is appreciate. Thanks

Jessica

Written by
Jessnhann02 profile image
Jessnhann02
To view profiles and participate in discussions please or .
Read more about...
5 Replies
jujulini profile image
jujulini

you mention iron. have you been tested for heavy metal toxicity? do you have dental amalgam fillings? read my profile. i became ill right after dental work. no one thought to test me for heavy metals until 3 yrs after symptoms. (see my profile)

Jessnhann02 profile image
Jessnhann02 in reply tojujulini

My heavy metal tests did come back normal. I'm so sorry dental work induced this for you.

jujulini profile image
jujulini in reply toJessnhann02

forgot to mention-that blood tests for heavy metals are inaccurate. it should be done with hair or urine (preferably a 24 hr)

Jessnhann02 profile image
Jessnhann02 in reply tojujulini

That's great information! I see my urologist the 5th. I will have to mention this.

jujulini profile image
jujulini in reply toJessnhann02

if they cant figure out whats wrong with you, i am thinking it is some kind of toxin. think back to when it started, and what you were exposed to. possibly an herbicide???

Not what you're looking for?

You may also like...

Eat or Parkinson's

Been tested told I didn't have Parkinson's yet my tremor acts like Parkinson's left arm whe...
Rickf profile image

Need advice on my tremor symptoms

Hi all, I would very much appreciate some advice on my symptoms. I am not on medication yet but am...
Hope-full1970 profile image

How come I can control my shaking in Parkinson's disease?

Ken Giuffre, MD from John's Hopkins ~ https://www.quora.com/profile/Ken-Giuffre ~ I'm sorry but...

When is it not Parkinson's disease?

I see so many people here on HU asking about their progression and if it's normal. I believe that...

dx then un-dx

my grandfather had Parkinson's. My mother had essential tremor, which I developed in my late 30s....
Bhaktitoo profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.