About 9 years ago I began to develop a tremor. I eventually got around to seeing a neurologist in 2013. After MRI's in Syracuse they told me I had a fragment in my cerebellum and that was the cause. They tried medicating my tremors with no results. Along side tremors I had horrible headaches and the tremor began to spread. January 2017 I traveled to the movement center in Rochester. By this time my tremors were in my neck and legs. Descending stairs an issue. Loss of balance when my eyes are closed. HEADACHES. MRI'S detect white matter on the brain as well as dark matter. Lesions and iron accumulation. Spinal tap popped positive for Ms. Apparently they don't think that's what it is. Genetic testing showed it isn't nbia. Running 2nd round of genetic testing as we speak. I'm now developing lumps. One on my neck and one in my lung. I cannot urinate to save my life! I'm always in pain. Medicine doesn't work. For the life of me I cannot figure out what this is! I get progressively worse right before I menstruate every month. I'm losing my memory. I cannot stand or sit for any length of time. I can barely feed myself and I have to drink everything through a straw. I choke on fluid multiple times a day. I haven't worked in a year. I'm 34 and disintegrating at a rapid rate. Any feedback is appreciate. Thanks
Jessica