Very scary article about the use of off l... - Cure Parkinson's

Cure Parkinson's

26,584 members27,904 posts

Very scary article about the use of off label of nuedexta. We all need a patient's advocate.

parkie13 profile image
6 Replies

cnn.com/2017/10/12/health/n...

I know that some of the Parkinson's people live in nursing homes. Some of us are on a lot of different medications, hopefully there's somebody in our lives that can advocate for us.

Written by
parkie13 profile image
parkie13
To view profiles and participate in discussions please or .
Read more about...
6 Replies
sharron2 profile image
sharron2

Thanks for that informative and scary article. A must read for PWP partners too.

Juliegrace profile image
Juliegrace

Horrifying.

ddmagee1 profile image
ddmagee1

After what my Dad went through in several nursing homes, a couple of which were supposed to be well qualified, I never ever want to end up in a nursing home. I’ve told my family this. Because I have PD that is advancing, and my age is going against me, I may end up in one of those “scary” places, whether I like it or not! I try not to think of that, because it was a nightmare for me and my Dad and our family, and I’m afraid it would end up being a nightmare for me, too! People in nursing homes definitely need advocates, and it’s important that those advocates check on the patients unannounced, so that they can assess what’s really going on in the care of the patient. That’s all I’m going to say! I could write a book on what wrongs were done to my father, when he was in nursing home care!!

parkie13 profile image
parkie13

I'm very sorry, I'm scared too

aspergerian profile image
aspergerian

My deteriorations have me looking at nursing home options. Scary, indeed.

ddmagee1 profile image
ddmagee1 in reply toaspergerian

I wish there was another alternative. I will try assisted living as long as possible, I guess!

Not what you're looking for?

You may also like...

question for you all. Do you know of any insurance type policies that cover age care or long term care ?

Do you know of any insurance type policies that cover age care or long term care ? I asked...
LAJ12345 profile image

WE ALL NEED A BREAK

https://www.youtube.com/watch?v=NrMIRI9XSQ8 https://www.youtube.com/watch?v=RmAQVNpJGCA
MBAnderson profile image

Absolutely Horrendous!

GOD help us if we ever end up in a nursing home. 98 Seniors Die of Coronavirus at One New York...
pdpatient profile image

Hydroxychloroquine was administered at a nursing home for Covid-19. No death and no side effects for all 39 of the elderly patients treated.

What happened at a Galveston County nursing home over the last week was one of the first big...
rescuema profile image

Tasigna off label for parkinson's disease. What happens when the smallest kid on the block gets run out of town. Time for a vote.

Hello People With Parkinson's (PWP). I started this post two weeks ago. It wasn't worth the...