Not the end of you: PD it's not the end of... - Cure Parkinson's

Cure Parkinson's

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Not the end of you

trishtheteacher profile image
6 Replies

PD it's not the end of you. it's annoying. I hate it, but I will not let it win.

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trishtheteacher profile image
trishtheteacher
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6 Replies
dfasci profile image
dfasci

The only thing with me is getting at a younger age. I'm 57 now, have had it for 12 years and I can honestly say I'm not looking forward to growing old. Other than that I'll fight it until the end. Both my parents are in their 80's and I hope not to fight it that long. A lot could change in 25 years with medications though. Somehow you have to make the best out of the worst times the "off" times. My times are usually two hours or so, I'll pop in a movie knowing that when it's done I'm "on".

alexask profile image
alexask

I thought that. Then I thought it was the end of me and I would eventually go the way of Robin Williams. Then I discovered Mannitol.

trishtheteacher profile image
trishtheteacher in reply toalexask

I take Mannitol, too! Not sure if it's helping yet.

Bridielena profile image
Bridielena in reply toalexask

I understand where you are coming from re Robyn Williams. It's an awful thing but I seem to lift myself once I put my mind to it.

What's Mannitol.....prescription only or over the counter

alexask profile image
alexask in reply toBridielena

It's a diabetic sugar - you have to find it on the internet. It is relatively cheap- about £35 for 2kg which lasts four or five months. Israeli scientists discovered that it had a remarkable effect on fruit flies with about 70% showing improvements. And a lot are reporting benefits on here, so it is worth a try.

JohnPepper profile image
JohnPepper

That's the spirit! There is something you can do about it. Look at my profile and make contact with me. I have lived the past 15 years, medication-free. It costs nothing, but a lot of commitment and just 3 hours of exercise a week.

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