My hands/brain loosing connection??

[Sirshakealot]

First I want thank everyone for your replies, they really help. Now, my hands and brain seem to of loss particial connection. Example, when I use them, I feel as though there is a disconnect. My wife has a beautiful coffee cup that is special to her. When ever I make her coffee, I have to stop and fully concentrate on the steps needed to pick the cup up. Making sure when I place my fingers in the handle that they are closed and secure. As I am lifting the cup up, I have to stop, concentrate on placing the other hand securly around the cup. I then stop, slowly turn before I start to walk making sure both hands are securly around the cup. I repeat but backwards when putting the cup down, so one or both hands dont unintentionally knock the cup over. Does anyone else deal with the same.

[Boyce3600]

I had a Speech Therapist evaluate my husband He has problems with procedures, what to do 1st 2nd 3rd. Is this what u are feeling

[Sirshakealot in reply to Boyce3600]

No, I know what have to do. If I just pick up the cup, its a good bet its slip out of my hand, because its as though i loose grip or sensation or my hand gives way. I have to be completely conscience when i am carring anything breakable to the point I can not get distracted. I hope that makes more sense.

[Boyce3600 in reply to Sirshakealot]

Yes, it does make sense. Have u asked the dr about it?

[Sirshakealot in reply to Boyce3600]

Yes I did, he just ignored me. He already had his mind made up, thinking my tremors were from a medicine I am no longer taking. Nothing has changed.

[arwenmark in reply to Sirshakealot]

Get a new Dr. preferably a movement disorder specialist.

[Sirshakealot in reply to arwenmark]

Thats the plan. I am talking to the VA about allowing me to see one outside the VA.

[Boyce3600]

I have found that a very good therapist is way more knowledgeable many times than even a neuro perhaps you could pursue asking one

[Sirshakealot in reply to Boyce3600]

Fantastic idea. I am in touch with the VA, trying to let me go and see a movement doc outside of the VA.

[adrienneb]

Dear Sir: I totally understand what you are describing. For the past several months my right hand has not responded well to my brain. I first noticed it when washing my hair---it seemed to be content to let the left hand (the side my tremors began on) do all the work. Now I cannot do much of anything with my right hand, which is a real bummer.

I went to an OT, who tested and found my strength was fine, but the hand just wasn't coordinating well. She had me try some exercises, but so far nothing has helped. If you figure out what to do with it, please let me know. I am discouraged, and wish i could get the use of the hand back....

[Sirshakealot in reply to adrienneb]

I am sorry for what you are experiencing. Any info I come across or relayed to me by a doctor I will absolutely send it your way. Stay Strong and Positive. God Bless

[bassofspades]

This happens to me and i understand why it happens, but im not sure i can explain it clearly. From reading the material on pdrecovery.org, which i strongly recommend, i have learned that pd patients dont function in the parasympathetic mode. In that mode, normal movement Is controlled by dopamine in the brain. Movement is smooth , fluid and effortless. Instead, We function in the sympathetic mode, also known as fight or flight, where our brains are constantly assessing if we are safe or in danger. Movement is controlled only by adrenaline (epinephrine) and is deliberate. Involuntary movement is very difficult to impossible. This is why you get things like freezing and cogwheeling with movement. Please take the time to read the extensive research on this subject available for free at pdrecovery.org. i hope that makes sense.

[Enidah in reply to bassofspades]

Thank you for sharing this information. It certainly rings true. I will check out ofrecovery.org.

[Enidah]

Pd recovery.org... Autocorrect...grrr