Who has non tremor just slow motor. What are you taking?

[anthonyjohnrobinson]

Hi,

I only get any kind of tremor when tired and under stress, I do however go into what I call "shutdown mode" and slow to a stop.

I take ropinirole (5mg x 3) and levodopa/benserazide (100mg/25mg x 5), so that I can continue to work I start my day at 04:00 hrs with the first levodopa then when I get into work or log on at home at 07:00 hrs the first of the ropinirole and 2 x levodopa, Then it is levadopa at 10:00 hrs, ropinirole at 13:00 hrs, levodopa at 16:00 hrs, ropinirole at 19:00 hrs and levodopa at 22:00.

It sort of works unless I get very tiried when nothing seems to work.

Tony

[shasha]

well i have to say that nothing has worked for me - i must have a form of parkinsons which does not respond to any levadopa or anything else

[PatV]

I have no tremor. I have stiffness and dystonia. I take sinemet and sinemet CR. Hope you get some relief soon.

[Beachdog]

carbadopa/levadopa ER 25/100 @ 7am and 3PM.

Phasing out Azile$t.

[Dennis in reply to Beachdog]

a$ did i ...

carbadopa/levadopa 25/100, 2 every four hours round the clock and ER at 10 am. My wife wants me to go off all meds and "see what happens.?"

[Owenbob]

Saw my PD specialist yesterday, and he took me off the 6 sinemet I was taking every day, I don't think it was working very well. No bad reaction yet. Think he may start me on something else soon.

[Dennis in reply to Owenbob]

Owenbob- I sure would like to know how it goes? What happens? What doc replaces old meds with? My wife wants me to stop all PD meds and just see what happens. Any danger in that? Dennis

[etterus]

I have slowness lightheadedness, and poor balance but minimal tremors. Started azilect before it was approved in 2003. Stopped it in 5-11 for a datscan but restarted it this week. Also take c-l dopa every 3 hrs 4-5 times a day. Get slower when it wears off but also fearful and depressed... worse than the slowness.

[goose63058]

I don't have a tremor I shut down too, but I call it hitting a brick wall I take carb/Levo100/25 every 2 hrs. unless I forget to take it, then I feel it in my feet, sort of a vibration and it hits me through out my body I can hardly move and i get shortness of breath. It's awful, this disease.

[Hidden in reply to goose63058]

That's the same I'm taking .

[tlongmire]

I don't have a tremor and take carb/levo 25/100 (1 1/2 tablets 4 times a day). However, I like Shasta, don't really feel that it works for me. So, my plan is just to stay on this dosage for as long as I can. Symptoms would have to get much worse before I let them increase my dosage again. Hope and pray that's a while into the future.

[hilarypeta]

I dont take anything as yet and feel much better than most on meds..just a little stiffness in ome wrist and ankle, littlemuscle weakness and cramps in some exercises..trying alternatives, herbal, diet, homeopathy, kinesiology..mercury detox etc ..

[Owenbob]

I have been taking sinemet for a couple years. I can't really say that it helped much. It didn't seem to do much of anything. My new neurologist said if it wasn't doing anything, to try to go without it for a week. It's been four days and I feel quite good. Yesterday I did take 2 sinemet as I was really feeling quite terrible - tired and poor balance. By evening and today I've been feeling fine. Balance still not good. So maybe carbadopa/levadopa isn't the right medication.

[cabbagecottage]

thats very interesting Owenbob. My husband has been on Sinemet plus and CR at night for 5 years now also Rotigtine patches . I have never ever seen much difference although I did think the Patch has help his mental..mood concentration .. I have often felt like stopping them to see what happened but am afraid .. I have alwsys been of the opinion that it is worth trying anything not much to lose , can always stop if it causes problems ..