New to this site

[Dsg3]

I'm a widower with neurodegenerative Parkinson's. Looking to make friends or acquaintance with others who have similar diagnosis.

[maricor828]

Welcome to the group! 😍😍

[Dsg3 in reply to maricor828]

Ty

[JohnPepper]

My first symptom started in 1963, when I found that I could not throw a ball properly. I was finally diagnosed with Pd in 1992 when my symptoms, most of which were being treated with medication, had slowly got worse and worse. Only when I started to shuffle was a neurologist able to diagnose the Pd.

Because of severe back problems, I had been going to the gym every day, six days of the week, since 1968 and until diagnosis. Then I increased the time to 90 minutes a day. In 1994 my symptoms had accelerated and I therefore decided to stop going to the gym.

Since 1994 I have been doing Fast Walking plus taking an MAO-b inhibitor, managing stress levels, keeping a positive attitude and doing regular mental stimulation. By 1998 most of my visible symptoms had disappeared. By 2002 I was able to come off all my Pd medication, and have continued to be medication-free ever since. I am 82 years old now in 2016 and live a 'normal' life, full of purpose!

Many Pd patients think that they will not be able to do Fast Walking! I have found that many other patients, who had walking difficulties, even those who were wheelchair bound, have been able to walk normally, once I have shown them how to use their conscious brain to control the movement. I go all over the world successfully showing hundreds of Pd patients how to walk properly, with only three exceptions. One could not stand on his own legs and the other two were unable to understand how to use their conscious brain. Above all else, walking costs nothing and everybody's health improves, when they do fast walking, and if you put everything into it, then that may include you!

Many neurologists throughout the world, who have never examined me, have told their patients that I do not have Pd and should therefore not listen to anything I tell them. I have been examined by four different neurologists, the last of which was in 2015, and they all told me that I have Pd. The problem is that I look so well and because there is no cure for Pd, I obviously don’t have Pd. It is not my fault that this is happening to me, but I am determined to share my good fortune with every other Pd patient, at no cost to themselves

Obviously there is a lot at stake here, especially for the pharmaceutical industry, who have spent billions looking for a cure, and neurologists, because I have not needed to consult a neurologist since 2002, other than the one I asked to examine me in 2015.

View my website - reverseparkinsons.net and contact me from there.

[benjamin63 in reply to JohnPepper]

THANK YOU, BUT EVERY BODY IS DIFF.

[JohnPepper in reply to benjamin63]

How do you mean? When it comes to medication, yes, different people react differently to medication. But no medication does anything to slow down the progression of Pd, other than possibly MAO-b inhibitors.

Unless we have some other health problems, we can ALL do exercise. The only difference there is willingness. If a Pd patient cannot motivate him/herself to do exercise, knowing that it CAN help them to live a better life then I feel sorry for them.

[Dsg3 in reply to JohnPepper]

Every person has different health issues besides pd

[JohnPepper in reply to Dsg3]

Of course!

[Dsg3 in reply to JohnPepper]

Ur incorrect about all being able to exercise. It's difficult when a person is loaded down with a myriad of health problems. From brain to toes...So don't assume.

[JohnPepper in reply to Dsg3]

Sorry! Would you like to learn any more about possibly walking?

[FMundo in reply to JohnPepper]

Well John. . . I never exercised my whole life. I got PD. Six months ago I started seriously exercising (riding an exercycle 10 miles a day and other muscle building equipment at the Y). Conclusion I feel terrific and like I shaved 30 years off my life. Overall better than when I didn't have Parkinsons. Arizona is, much of the year, too damned hot to fast walk outside, maybe I should find an airconditioned place.... I believe you are correct that exercise improves things. And walking is "the most natural" form of exercise there is. Doesn't require any expensive equipment either!

[JohnPepper in reply to FMundo]

I am so pleased to see your story here. You might find that cycling can also reverse Pd symptoms, I don't know. If you don't see any improvements in any of your symptoms after six months then consider the fast walking.

It also gets quite hot in summer so I walk early in the morning, before the sun has risen. It is quite cool then and it does not interfere in my other activities.

[Dsg3 in reply to JohnPepper]

Ur an inspiration. Unfortunately my back and neck issues including nerve and muscle weakness prevents my movement from being normal. I have tried willing myself to walk normal but no. It won't happen. I spend 80 percent of my time in bed. It would be awesome to b normal again

[JohnPepper in reply to Dsg3]

Please be patient with me! See if you are able to do this:

Get someone to hold onto your left arm, while you are standing up.

Then put all your weight onto your left leg, so that you are able to swing your right leg backwards and forwards without falling.

Then see how far you are able to stick your right leg out in front of you.

If you can stick it out further than you are currently stepping forward, when walking, then I can show you how to walk normally. Please contact me on my website, reverseparkinsons.net and I will help you to walk normally. I do not charge anything for any of this.

[benjamin63]

THANK YOU NO PROBLEM WITH ME

[gurdeep11]

where you from

[ddmagee1]

Welcome to this 'forum'! Much can be learned by participating in communicating with others, who have PD and/or variations of Parkinsonism. Happy reading! Knowledge is power!

[Hidden]

I am very happily married to my wife/caregiver. Inviting you to view my Posts and Replies. I am a homebody due to the 25 feet of oxygen tube connecting me to an oxygen generator. What I miss most in life is my horses and mountain trail riding with friends.

[BENJI63]

I BIANCA WOULD LOVE TO BE YOUR FRIEND

[BENJI63]

WELCOME TO THE GROUP

[BENJI63 in reply to BENJI63]

THANK U