Studies to Slow or Stop Parkinson's Disease
Webinar Thursday, October 15, 12 to 1 p.m. ET
The holy grail of Parkinson’s research is a therapy that will slow or stop the disease, and this year we made great strides toward such a treatment.
“I feel like we’re in one of the peak periods in terms of innovation and the exciting science that has moved from the laboratory,” says MJFF CEO Todd Sherer, PhD, in our latest podcast.
michaeljfox.org/foundation/...
Thank you, RoyPop. Your posts are particularly helpful to me as I am starting year 3 and hope to avoid meds and modify a lifestyle which is most beneficial for my PD.
As they say, we all are different. What works is what works. Of the two types of Parkinson's, Tremor Dominate may not require medication early on. PIGD form may.
Three years plus, w/o medication. I expect that time will come. When I do medicate, the drug will be effective later in my life than if I started at dx. Neurologist says it does no harm to postpone drugging myself. While not on medication, the money saved will be considerable. While not on medication I will have better health free of awful side effects.
I guess my age is a factor, I am 75 and retired. For those who are younger and in the throes of providing and running a family household the needs are different.
The Patient Access Network Foundation (PANF), recently launched a program for patients being treated for Parkinson’s disease. This fund is one of nearly 60 disease-specific funds offered by PANF, spanning programs for cancer, chronic illnesses and rare diseases.
PANF's Parkinson’s disease fund helps eligible individuals and their families by providing funds for out-of-pocket costs of critical medications. Those who qualify are eligible to receive up to $16,500 per year. To qualify, applicants must have insurance that covers the medication for which they seek assistance, reside and receive treatment in the United States, and have a household income less than or equal to 500 percent of the Federal Poverty Level.
Title of topic: Patients like me data
patientslikeme.com/conditio...
National Parkinson Foundation - Joseph Jankovic, MD
What are the different forms of Parkinson’s Disease?
youtube.com/watch?v=pf6BGBl...
Exercise
•A review of 14 studies on treadmill training found that three studies show an immediate effect of increased walking speed, longer stride length and improved balance as early as after one treadmill session. Longer-term trials, numbering 11 in all, demonstrated not only safety, but positive benefits in gait speed, strike length and related quality of life even several weeks later.
•And at the Cleveland Clinic, Dr. Alberts et al. found that when people with Parkinson’s pedaled on a stationery bike 30% faster than their preferred “voluntary” rate (or forced exertion), they not only gained in aerobic fitness, but also showed improvement in motor function and coordination as well as manual dexterity. This improvement was retained some weeks after the exercise stopped.
parkinson.org/Parkinson-s-D...
walking briskly, can help to improve the symptoms of Parkinson's disease
The walking sessions met the definition of moderate intensity aerobic exercise, with the average walking speed approximately 2.9 miles per hour ....45-minute sessions of moderate intensity walking, three times a week....
The researchers found that the brisk walking sessions resulted in the following improvements:
Motor function and mood: 15% improvement
Attention/response control: 14% improvement
Tiredness: 11% reduction
Aerobic fitness and gait speed: 7% increase.
In the motor functioning tests, there was an average improvement of 2.8 points among the participants, a score that is deemed to be a clinically important difference.
Study author Dr. Ergun Y. Uc, of the University of Iowa in Iowa City and the Veterans Affairs Medical Center of Iowa City, says that results suggest "walking may provide a safe and easily accessible way of improving the symptoms of Parkinson's disease and quality of life."
medicalnewstoday.com/articl...
I am a Personal Trainer - Certified in Delay the Disease - I specialize in training people with Parkinson’s.
I really wish more PWPs would understand how beneficial this type of exercise is to delay/control symptoms!
The Patient Access Network Foundation (PANF), recently launched a program for patients being treated for Parkinson’s disease. This fund is one of nearly 60 disease-specific funds offered by PANF, spanning programs for cancer, chronic illnesses and rare diseases.
PANF's Parkinson’s disease fund helps eligible individuals and their families by providing funds for out-of-pocket costs of critical medications. Those who qualify are eligible to receive up to $16,500 per year. To qualify, applicants must have insurance that covers the medication for which they seek assistance, reside and receive treatment in the United States, and have a household income less than or equal to 500 percent of the Federal Poverty Level.
panfoundation.org/parkinson...
RoyPop, have you noticed any progression of PD in your daily life?
Oh yes? Ever so silently and gradual, the Parkinson's monster makes itself known, year by year. Despite my attempts to stall:
1. coconut oil
2. ketogenic diet ( I tested my blood regularly )
3. No sugar, low carb diet
4. exercise
5. mind control, willing the tremor to stop
Weirdly the thing that stops my tremor is beer or even wine.
Is it better to abstain from alcohol for we who already have a brain disease?
When I drink even a small glass of beer the tremor slows or stops. Handy tool for social situtions.
TY
levodopa and dopamine agonists’ treatment in Parkinson’s disease (PD) patients can become ineffective to control involuntary movements. Laboratory studies on PD animal models suggest that physical training may help to alleviate these symptoms offering an alternative form of therapy.
parkinsonsnewstoday.com/201...
“What we found was it’s not so much the exercise, but the routine activities from daily living that were protecting motor skills,” Bohnen said in a recent news release. “Sitting is bad for anybody, but it’s even worse for Parkinson’s patients.”
news release: Everyday activity more beneficial than occasional strenuous exercise for Parkinson's disease ~ prnewswire.com/news-release...
Guideline Summary for PATIENTS and THEIR FAMILIES
Updated Guide: Diet and Parkinson's
