I have been in sort of a funk since yesterdays webcast. Scientist are now linking pain to Parkinson's ? I thought that was the main symptom. I thought that was a no brainer. How close are we to a cure if scientist are only recently seeing the connection between Parkinson's and pain. Did I miss understand yesterdays message? I am no trying to be mean but I I I I ...... I will shut up now.
In a Funk.....: I have been in sort of a... - Cure Parkinson's
In a Funk.....
66 Replies
•
Not everyone has pain. I never have and am very thankful.
• in reply toSkymom2008
Have you really been diagnosed for 9 years and you have not had any pain? The very first thing on my mind when I wake up is time to take my meds and wait until they kick in to start my day. I very rarely go a day without pain. I try to keep my life as stress free as possible because stress equals pain. I saw RoyProp's survey and thought that the 20% who had no pain just were not in a constant state of trying to fight it but I thought everybody at one time or the other had days of pain. And you have been diagnosed for 9 years. Even stress dos not send you over the edge?
Skymom2008• in reply to
Stress increases my tremors and makes me anxious. No pain. We are all so different, it is crazy.
• in reply toSkymom2008
Tell me about it. I seem to learn something new every week but this revelation blows me away. I could see if you had just been diagnosed but 9 years. Thank you I didn't even consider it a possibility that someone could be pain free without medication.
Skymom2008• in reply to
I take med. carbidopa-levodopa, the patch and amantadine. No med for pain as never have it. I have read
that a lot of people do, however.
The meds you are taking help or mask the pain. The pain is PD related and may not be helped with typical pain meds. I have pain when meds wain.
Do you meds keep your tremors well controlled?
Do you have really strong, fast tremors? Just curious. Strong, fast tremors are my only problem so far.
I don't have strong fast tremor. And it is just now getting worse. My neuro has always said that Parkinsons with a tremor is the best kind to have....don't know why.
I hope he's right. Mine started in left arm and sli. left leg about 2008 when I was going thru a very stressful time. Just started this year on my right side. Makes me very nervous. Keep praying for a miracle.
Skymom2008
I wonder why he would say that?
I don't have tremors.
I don't know. I will ask next time.
4 (tentative) subtypes of PD
Skymom2008,
On this forum, we constantly marvel how miscellaneous we all are symptom-wise. But it's good to know science is beginning to bring some order out of the chaos.
A research paper from 2005 used a statistical technique of clustered symptoms to discern 4 basic subtypes of PD: "The data driven approach robustly identified distinct cohorts of patients: younger onset, tremor dominant, non-tremor dominant, and rapid disease progression." (YO, T, NT, and RDP, for short.)
First, let's answer your question:
Why is it commonly said that tremor-dominant PD is "the best kind to have"? The researchers write
"Many studies have made a distinction between a benign ‘‘tremulous’’ form of the disease compared with a more aggressive ‘‘bradykinetic-rigid’’ form, but these studies did not use the strict diagnostic guidelines followed in this work . . . However, the tremor dominant sub-group identified here concurs with those of previous works which have shown this type of patient to have a slower rate of disease progression and less cognitive impairment compared with non-tremor dominant patients."
They sum up the 4 types this way: "The study identified a subgroup of PD patients with younger disease onset who have a slow rate of disease progression and no cognitive impairment; a tremor dominant subgroup of patients who are not cognitively impaired, and a non-tremor dominant subgroup with mild depression showing cognitive impairment that is most pronounced in the performance of executive functions. Finally, a subgroup of patients may exist who have a rapid rate of motor progression but no marked cognitive impairment."
You can read all about the pros and cons of the 4 subtypes here:
ncbi.nlm.nih.gov/pmc/articl...
Thanks for the great explanation
I don't have pain either. Gratefully!
Where do you experience the pain, sirshakes?
I have spent the last year and a half trying to get some relief for my back although it is not uncommon for a muscle in my neck or arm or leg to cramp up and take days or months to loosen up. I have been on Gabapentin, Cyclobenzaprine, trihexaphinadryle, Baclofin, oxycodone, and even had 21 shots of botox all at once to try and help. Finally I started treating my anxiety and my back just loosened up almost magically.
I am sorry but I am still trying to wrap my head around this. So when the scientific minds say we have studied Cannabis and have found no scientific link between it and helping those with Parkinson's, they are not referring to pain or sleep or anxiety, just movement?
Astra7• in reply to
Does massage help?
• in reply toAstra7
Hard to say. I tried a deep tissue message (Roulphing? does that sound right?) . I started to tie up in about 10 min. after. If I put my shower on message with some nice warm water the pain is gone almost instantly only to come back when I am out. I don't know if its the actual message or just so calming that the anxiety goes as does the pain. Do most of you live with little or no pain? Am I the odd ball? I just assume that almost everybody dealt with the non motor symptoms as well as motor. That is why one of my first posts was the non motor problems with Parkinson's. It was a revelation to me and thought most of the Parkinson's community was like myself.
Shelly1209• in reply to
I have pain all the time. But I have other issues and am not sure which causes the pain. I have a few autoimmune diag.
Fibromyalgia, ulcerative colitis, Hashimotos, I also had endometriosis. I have nerve damage in the left leg. (a leg cramp popped off the end of my fibula in 2014). I have Reflex Sympathetic Dystrophy in the right leg. I also have 2 stnovial cysts in my spine. PD was just diagnosed 6 months ago. But have had all over pain since 2000, thought it was the fibromyalgia (diag 2012(
Bailey_Texas• in reply to
Where is the pain is it between your shoulder blades? And do you exercise?
• in reply toBailey_Texas
I did up until my back pain became to intense. I tried to take all the info. on exercise and apply it what has been proven. I got on a treadmill and just walked. Next I added 3 point turns and because my toes would curl up walked backwards. I added the swinging of my arms and finger flicks. I then added jogging at 5 miles per hour until I was tiered and back to walking. I then added two golf balls and swirled them in my hand one direction then the other direction. Lastly I did 1 min. sprints at 10 miles an hour. I tried to have between 5 to 6 miles at the end of the hour. Then I would do core exercises for about 30 min.I started that in 2012 and stopped Oct 2014 when my back just would not loosen up. I spent hours a day in the Cobra position /got bored / so I picked up my sons Mario Kart and spent hours a day doing that. My fine motor skills started getting better and I became competitive.
( I didn't realize how much I sound like Forest Gump.)
hu1000• in reply to
Have you considered that various foods and an imbalance in the microorganisms in the gut -- may be a primary reason for the pain?
System wide inflammation and neuro-inflammation, fatigue and malnutrition are potential downstream indicators of issues in the gut.
• in reply tohu1000
Thank you for your suggestion, I am now relatively pain free. Believe it or not pain medication would not touch it. Also it was not helped by traditional PD
meds. I am now taking 175mg of zoloft which is an anti anxiety med. I am ready to start living again. I also take 3 X a day alprazolam 0.25mg a quick acting anti anxiety. No wonder I was fighting shadows in my sleep.
hu1000• in reply to
Interesting.
Zoloft made a big difference for me, and I have now taken it for about 20 years, starting in ~1996.
The dose was started at 50 mg per day. Over the years it was increased to 100 mg and then 150 mg.
The zoloft (sertraline) helped a great deal with the symptoms i was experiencing at that time: fatigue, peripheral neuropathy, musculoskeletal discomfort, muscle weakness, food sensitivities, system wide inflammation, weight loss, anxiety and depression.
Tremor didn't present until 2008, with diagnosis of Parkinson's about 2010.
• in reply tohu1000
My tremor didn't present itself until 2008 and diagnosed in 2010 also. I was given at first escitalopram that made me to happy. hmm not so bad of a side effect now. I was way to emotional. Imagine the looks of your in laws faces when you are the crying more than most of them at your Mother in laws funeral. Then I went to amitriptyline but still was freeking out. In October of last year we converted to Zoloft. At 25 mg intervals I have slowly changed my brain chemistry so I am no longer in agony. I think I am just settled in now at 175 mg and 3 .25mg Alprazolam. It is very interesting because it is about the time you were diagnosed that people started commenting that I was getting unflexable non spontaneous (liked my duckies in a row.) In 1997 we just had our 2nd kid and I just figured that was the issue. Thank You!!!!
It is unfortunate you are feeling pain. The good news is scientists are aware of this problem and am testing various clinical compounds to relieve it.
Prolonged-release oxycodone–naloxone for treatment of severe pain in patients with Parkinson's disease (PANDA): a double-blind, randomised, placebo-controlled trial
"The primary endpoint, based on the full analysis population at week 16, was not significant. Nonetheless, the results of this study highlight the potential efficacy of OXN PR for patients with Parkinson's disease-related pain and might warrant further research on OXN PR in this setting."
thelancet.com/journals/lane...
Unfortunately no relief can be found in the above article.
Naloxone, brand name Narcan, is normally used as in an emergency when someone ODs from an opiate/heroin. Narcan is the sister drug to Naltrexone and has been shown to be a potential for levodopa-induced dyskinesia:
ncbi.nlm.nih.gov/pubmed/190...
Interestingly, Naloxone's sister drug, naltrexone, has been shown to reduce pain in fibromyalgia patients:
Naltrexone May Lessen Chronic Pain
medpagetoday.com/meetingcov...
Also,
The use of low-dose naltrexone (LDN) as a novel anti-inflammatory treatment for chronic pain
ncbi.nlm.nih.gov/pmc/articl...
Low dose naltrexone has also been tested on PWP and was shown to reduce fatigue:
sciencedirect.com/science/a...
Here is an article to think about:
Enhancing acupuncture by low dose naltrexone
aim.bmj.com/content/early/2...
Though it is given to patients in 4.5 mg doses (before bedtime), doses usually start low - 1mg and work their way up to 4.5 mg over say a 3 month period.
My father went on it and it was one of the only things that did help him. Dopamine agonists made him a zombie, entacapone made him loose control of his tongue, facial muscles and arms. He went off of both.
LDN has to be acquired from a compounding pharmacy and a prescription is required. Fortunately in the age of the internet it can be purchased here (without a prescription):
Of course drinking or the use of opiate-based pain killers or marajuana should not be used with LDN.
I hope this helps.
Rich
• in reply tosilvestrov
I am not sure if you are a Doctor (silvestrov) but would you see any complications besides drinking, opiates or marajuana.
Pramipexol
Amantidine
Azilect
Alprazolam
Sertraline
Rytary
zolpidem
NAC
Omeprazole
Polyethylene Glycol
I think that's about everything. If this is above your pay scale and I should talk to my Doctor let me know.
silvestrov• in reply to
Naltrexone can be used with pramipexole. Naltrexone at full dose has been tested to see if it can lessen/control impulse disorders as caused by dopamine agonists.
pdf.org/en/science_news/rel...
Amantadine/LDN no conflict. Amantadine is a anticholinergic and LDN is a opioid antagonist.
treato.com/Amantadine,Low+D...
Azilect/no conflict. Azilect is a MAO inhibitor and LDN has no effect on MAO enzymes. The first interview I listened to about LDN was by a woman called Lexie and she took LDN and Azilect.
treato.com/Azilect,Low+Dose...
Alprazolam/xanax, no interaction. Xanax affects benzodiazapine brain sensors and LDN opioid sensors.
drugs.com/drug-interactions...
Sertraline/Zoloft, no interaction. Zoloft is a ssri -- a selective serotonin reuptake inhibitor so it effects serotonin levels and does not antagonize opioid receptors.
sanemag.com/article/depress...
Rytary/LDN no interaction. LDN & the various forms of levodopa have been used together in PD therapy. My father was on LDN and 25/250 C/L x 4.
"With DBS in place-I simply take my Sinamet at nite along with Klonazepam, Benadryl, Melatonin, Low Dose Naltrexone, Sleep Thru (By Giam Herbs) and Zoila!!-a good nite's sleep! good luck!!"
healthunlocked.com/parkinso...
zolpidem/Ambien, no LDN contraindications:
treato.com/Ambien,Low+Dose+...
NAC/LDN.....no negative interaction. No link needed here....
treato.com/Low+Dose+Naltrex...
Omeprazole/LDN, no interaction.
ehealthme.com/drug-interact...
Naltrexone/Revia:
"Tablets also contain: colloidal silicon dioxide, crospovidone, hydroxypropyl methylcellulose, lactose monohydrate, magnesium stearate, microcrystalline cellulose, polyethylene glycol, polysorbate 80, synthetic red iron oxide, synthetic yellow iron oxide and titanium dioxide."
A quote from the fibromyalgia/LDN study:
"The preliminary evidence continues to show that low-dose naltrexone has a specific and clinically beneficial impact on fibromyalgia pain. The medication is widely available, inexpensive, safe, and well-tolerated. "
If you are interested, xanax was out performed in a anxiety clinical trial by the amino acid theanine:
lifeextension.com/magazine/...
5-Htp Vs. Sertraline
livestrong.com/article/4883...
I am not a doctor but after investigating LDN I came to the conclusion that the only thing that really has a bad interaction are opioids and alcohol. Keep in mind if you need an operation you would have to use a non-opioid anesthetic. Of course, consulting a doctor would definitively put your mind at ease.
Strange, vivid dreams are the real side effect noted when using LDN. I bet you could get absolutely bizarre dreams if LDN was taken with melatonin - which causes strange dreams. After taking melatonin I once dreamed a full sized cruise liner was circling my bed.
• in reply tosilvestrov
started researching LDN and see that it is being used in conjuction with marajuana.
silvestrov• in reply to
"I've used marijuana while on LDN. Doing my best pseudoscience to think about the effects of LDN and marijuana, I couldn't think of why they would interact (negatively). The LDN works on OGF and OGF receptors, while the THC from marijuana latches on to CB1 receptors in the brain, resulting in the high, and the cannabinoids work with CB2 receptors, primarily dealing with inflammation. There are many more compounds than just those in marijuana, but it really is a very safe drug, as is Naltrexone. I haven't personally noticed any ill-effects that I would attribute specifically to using LDN and marijuana simultaneously.
"
crohnsforum.com/showthread....
I have an interesting article on marijuana and Parkinson's. I'm not very techie, I can barely answer my cell phone. Can you tell me how i would post it from my hot mail where I saved it to this site?
I regret to say I am not good at cutting and pasting on a cell phone. I prefer a desk top because of the large screen & it is easier to look and work at. I have a new Android & am still figuring it out. What type of cell do you have? I presume you are working from a cell?
I was just kidding about being so inept on even a cell phone, i need advise for everything techie. I just want to send it in an ordinary manner from the email on the computer to this site, kind of a transfer.
I never have trouble sending to my contacts, i just don't know how to get to this Parkinson's site
Here is an easy 'how to' for copying and pasting. It should clear up any difficulties.
Off to work here....have a good day.
How to copy a web page link or URL
silvestrov• in reply to
PS. thanks for catching my mistake. I know marajuana is not physically addictive and LDN is used for opioid addiction.... I should not write after working from 6AM to 8:30 PM....
I am curious and impressed... Are you a neuro-Pharmacologist?
No, I am a guy who reads and works too much has no social life and is, at the end of the day, an artist. I have painted, sculpted, edited, directed and acted in my past. I became interested in natural supplements in the late 1980's and read a book on amino acids around 1988. Around 1998, I had receding/bleeding gums and reversed the condition using the botanical oils of peppermint, spearmint and almond oil in the form of the supplement ORAMD:
google.com/webhp?sourceid=c...
My dental insurance would not cover going to a periodontist so I had to do something and for it and for 60 dollars I reversed gum disease.
I previously had an adrenal condition in which my doctor tested me and put me on an anti-depressant. The problem is depression is a symptom so I went off it it (slowly) and did another internet search and found a natural doctor, Dr. Lam, who treats hypoadrenal problems:
drlam.com/articles/adrenal_...
He placed me on a regimen of vitamins, minerals, amino acids, fatty acids and herbs.
For about 4-5 months I was taking over 23,000% of the daily allowance of state of the art vitamin C, six times the daily dose of pantothenic acid, full complex of b vitamins, liposomal glutathione (which helps to recycle vitamins C and E), DHEA, pregnenelone - the precursor of DHEA, omega 3 fatty acids, and other supplements.
The adrenal problems went back to my childhood days and I could not remember having it. I was on a dubious adrenal supplement which helped me but had side effects. When I searched out Dr. Lam my symptoms became worse and included mental confusion and twitching.....twitching is not an adrenal problem.... I know his therapy cured the adrenal problem and delayed the Parkinson's problem. By going through the adrenal therapy I learned how to couple supplements and use them for a therapeutic end.
How could Dr. Lam's adrenal therapy forestall the progression of Parkinson's? Let's look at some of the supplements he gave me in relationship to Parkinson's:
Vitamin C: Vitamin C Boosts Dopamine nanonutrausa.com/vitamin-c-...
DHEA: ncbi.nlm.nih.gov/pubmed/223...
Pregnenelone: ncbi.nlm.nih.gov/pubmed/232...
omicsgroup.org/journals/the...
Omega 3: articles.mercola.com/sites/...
Some of the supplements also contained, alpha lipoic acid, pine bark extract and resveratrol:
Alpha lipoic acid: ncbi.nlm.nih.gov/pubmed/204...
Pine Bark Extract for PD, it is a great supplement and, as of yet, I have not seen it posted on this website:
ncbi.nlm.nih.gov/pmc/articl...
Resveratrol: ncbi.nlm.nih.gov/pubmed/245...
The glutathione I took (3 times a day):
supplementclinic.com/Produc...
A bonus, I just realized the glutathione had NAC in it:
sciencedaily.com/releases/2...
Reduced glutathione: nature.com/articles/npjpark...
No link needs to be posted about B Complex.
In addition, I decided to do a documentary about PD (which is delayed in getting posted due to the lack of money), and I investigated many supplements, including some of the above, in it.
In a nut shell, the information I have acquired was learned over decades of research and practical applications to improve my own health.
Thanks for asking.
Rich
Rich, Appreciate your thorough approach, documenting with links, and humility. Always remember that humility. Without that you will flame out, in spite of a significant knowledge base that is helpful to others.
I would rather confer with someone like you, who may have no formally directed education or credentials with regard to neurodegenerative diseases, than with most of those who have that education and credentials.
Your approach is actually the approach of the scientist. You are seeking, learning, testing and reporting.
Hu100,
Thank you for your kind remarks. I am an artist and am a born experimenter and a career in the arts will keep anyone humble. It is a difficult career and luck has as much to do with success as effort.
To make a work of art you continuously need to seek, learn, test and report on your experiments to evolve your style. I investigate ideas and issues about Parkinson's disease no different than I do when compiling information to make a new painting.
I am fortunate to have a well rounded education and my expansion into studying science was one of necessity. I am a non-fiction reader, and studying science was a continuation of past studies.
Thanks again,
Rich
• in reply tosilvestrov
Do you have a webpage to view your art?
silvestrov• in reply to
richardmelvin.com is my website. The work goes back to 1984 and I need to add 3 paintings from this year. Artwork on the site includes painting, sculpture, acting clips and various videos.
• in reply tosilvestrov
Yes we would love to see the 3 painting from this year!! So please post them.......... 
• in reply tohu1000
I agree with you Hu 1000, Silvestrov is an awesome wealth of knowledge and covers... everything in detail.
I have been inspired by him and gained so much from him .. more than any Dr. has helped me.
Thank you Silvestrov.. you are such an asset to this site. Thank you for always taking the time to share your knowledge and helping others and helping me.
Sirshakes, have you tried exercise? I believe exercise is the best medicine. Intense forced exercise like boxing helps slow PD's progression. Check out rocksteadyboxing.org
Also, try Emergen C for a few weeks & see if it helps your pain. Antioxidants are great for your body & brain.
#$%&#! When I signed up for Rock Steady Boxing, the coach doing the assessments said the number one complaint she gets from everyone is pain. They are entering the program in hopes of mitigating pain. All else follows. Sheesh, where have these experts been??
My husband has no pain, never has complained about any. Has tremors, restless legs , confusion, but no pain.
i have an old back injury acquired after a cycling accident and I've used prescribed painkillers for years. A couple of months back, I started to experience severe pain in my left shoulder and neck and thought I'd injured myself doing yoga rather too enthusiastically but it's persisted and I'm beginning to think it's part of my PD symptoms. I get very, very stiff but since starting emergen c on laglags advice, that's improved a lot. So most mornings I do wake with pain which can be quite persistent although the painkillers help, Again, exercise is helpful and I've booked a massage.
I experienced no pain for about 6 years after diagnosis. Now, 11 years after diagnosis, my posture is getting worse (stoop, lean, rotation). I put this down to dystonia. This leads to backache. For me pain levels are very much linked to a lack of medication. I'd advise anyone with PD pain to check with their doctors whether it can be reduced simply by increasing levodopa levels.
John
Good morning. I just read your post and I have total empathy for your situation. I have pain every day too. I have suffered with a frozen shoulder, quadriceps tendonitis and severe knee pain which I have been living with for five weeks while waiting to see an Orthopedic surgeon. I was exercising every day. I did Curves, tried yoga and Tai Chi, bought and rode both an adult tricycle and a stationary bike. I also tried to keep up with my gardening and walking. It is hard to stay positive when you go from one "injury" to another, apparently from trying too hard to make yourself stronger and pain free. Hope your situation gets better and that we can all get out of the "funk".
I was in excruciating pain for 2 years prior to diagnosis. Was ready to give up. 3 weeks on a trial agonist and it was gone. Doc said its like oil to a car. Then I understood. Personally any area of my body that has been altered i.e. Rotator cuff surgery 2 left foot surgeries lower back and upper bulging discs from abuse when I worked or at home doing yard work delivering 2 babies lol. Also doc said older diagnosis usually has little to no pain. It is such an individual disease with multitudes of symptoms. I'm still getting new symptoms. Some of the worst yet. Be well do as much as you only feel up to. Don't overdue it. Rest is a major factor in this disease. Judy
Most of the PDers we know have no pain. My husband was diagnosed in '04 and has never experienced pain.
• in reply toDonzim
May God Bless you all. I wasn't in funk because I am in pain. I was in a funk that the best science minds who tout a cure just around the corner, are now seeing a correlation between pain and Parkinson's. It is like saying that we have just made a connection between the Sun and Sunburns.I can say with all of you trying to make me fell better I am no longer in a funk. Thank You
Hikoi• in reply to
Sir shakes
Could there be other ways of interpreting what you heard?
maybe it isn't the best science minds that are saying there is a cure just around the corner, maybe that's the media hype used to sell more magazines. Research results are also hyped up by some university reports I notice as part of their fundraiser drive.
The connection between pain and PD isn't new, but it's only recently that non motor symptoms are being talked about. Maybe it follows that scientists wouldn't be studying pain until there was more interest in the problem. After all would they get funding if no one was talking about pain and PD.
• in reply toDonzim
So is it like a 50/50 split, I am treated for the pain much more than the motor issues. Most of you don,t have pain? Not even when you wake up?
park_bear• in reply to
I gather from what you have said that your pain is due to muscle stiffness and tension. I was thinking pain is not a symptom of mine but yes, I have stiff and painful places when I wake up . First thing I do my yoga routine with forward, backward and sideward bends. By the time I am done I am much looser and feel livable.
• in reply topark_bear
If I had to diagnose myself I would have to say my limbic system has gone haywire. I take 150 mg sertraline anti anxiety and .25 mg alprazolam 3 x a day. also anti anxiety. I take these for pain. Nothing else worked.
laglag• in reply to
Have you tried Emergen C??
Astra7• in reply to
Have you tried those mattress things that move pressure around under you as you sleep? If you are waking in pain and not moving much as you sleep it may help? Might be worth a try and they do not seem to be too pricey.
• in reply toAstra7
I do have a Sleep Number Bed and find it quite comfortable.
Perhaps you have muscle spasms which can be quite painful. That we have dealt with from time to time but I can see that one could have a general body spasm with the resulting pain rather than just spots here and there. We use magnesium citrate and that must help with those. Get your cellular magnesium levels done.
Read the article in WSJ last week on muscle cramp and use of spicy things to stimulate oral cavity and esophagus. Wrote on this info then. We now use a lot of ginger and HotShot (read the article) to relieve stomach cramping and as a result nausea. So far I think the HotShot is working. It's in the neurons.
I know I am a mess. I know my back pain is anxiety related but it causes me to flush constantly so the result of that is rosacea so unfortunately no spicy foods.
sirshakes,
I have pain everyday. Some days are easier than others. I have noticed that stress plays a huge factor in my pain levels and also how much sleep i get. Some days I hurt all over so badly that I can barely drag myself out of bed.
I injured my back (before PD) back in 1997. I herniated 1 disc and severely bulged 2 other discs in my lower and mid back. My Dystonia is a constant aggravate to my back condition.
my legs ache do to constant muscle spasms. I have started soaking in epsom salt and that helps. When i had more access to the muscle relaxer, Soma, that greatly helped the muscle spasms but ever since the classified it as "a controlled substance" it has been a nightmare every month to get it filled. The insurance fights me the whole way and my Dr is very slow when it comes to giving the ok for refills.
Sadly, I can't remember the last time I didn't have pain. I do know that the better I can my Rytary to work, the less pain I have.
Sounds like you are feeling better................ I'm happy to hear that. Hope you continue to feel better and better.
Wishes, Best Darkflower
YES , I am feeling better and I can be quite a smart ass when I feeling good. Poor Baily , bad day for his new post. I was afraid I might have offended so I am glad to hear from you . Never my intent . Cyclobenzaprine worked for years for me and it gave me a good night sleep too. It just took about a year and 175mg Zoloft .20 Alprazolam to get some relief .Do you have one side a lot more muscular than the other? Have you tried Trihexyphenidyl , Gabapentin , or Baclofen , (mind you they didn't work for me) but maybe if you haven't tried. Some times Doctors can be very stern with Insurance Companies.
Just saw that I repeated myself from days ago. I don't know if my pain is reduced or I can't remember it anymore?
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