Your achievements or goals.

[Bailey_Texas]

Please reply with what you have achieved in the last year or what goals you have for the future. Small or large they all count.

[12stargate]

Bailey_Texas I know where you're going with this. I applaud you for asking this question. I have to get going this morning. But I will be back and I will reply to your question 👍

[12stargate]

Bailey_Texas I am back!! I am glad you are asking us this question about achievements and goals. Dwelling on our symptoms and dreading the future only gives us more of the same.

My achievement in the last few weeks is that I removed a huge stressor from my life.

I opened a Facebook post called "Together we can beat this." Please go to fb and 'like' it.

I set up a blog site yesterday with the intention of writing how I am healing from Parkinson's day by day. I just got it set up. Haven't written anything yet. I will when I have decorated the site some, and figure out how to write on it. In a few days I may have written a blog or two. Go to evagabrielle.com

My goal is to recover from Parkinson's completely.

I am presently reseaching what modalities will work for me. We are such individuals, and our healing is going to come to us using tailormade modalities for us.

My symptoms are getting better, and for this I am grateful

I am glad for you that you have found what works for you!!

Keep up the good work!!

[stevie3 in reply to 12stargate]

I can't find the FB page - can you post the link?

[Bailey_Texas in reply to stevie3]

facebook.com/Together-we-ca...

[stevie3 in reply to Bailey_Texas]

Gotcha. Thanks Bailey

Sue

[enjoysalud in reply to 12stargate]

Hi, I don't belong to FB, but with Bailey's help I got to your site, and got to peruse it. It is wonderful. Thank YOU!!!

[12stargate]

stevie3 In the search bar on fb put "Together we can beat Parkinson's" and it should pop up.

Let me know if that works?

[stevie3 in reply to 12stargate]

I used the link Bailey posted. When I typed in together we can beat Parkinson it said 'no results found'.

Sue

[12stargate in reply to stevie3]

stevie3 Try this Together we can beat Parkinson's Eva Gabrielle

[Littlerody]

I hope I'm using this site correctly. If your reply showed up in an email to me are you asking me the question or is it for the general population ?

Just in case lol my continued goal since diagnosis has been a cure. now that the warmer weather is here I've gotten back to my early morning water aerobics in my pool just about every morning. I'm trying to find out how to deal with my most recent struggle with my weakening ans. Hence all the questions about natural therapies. I am super excited about the combining efforts of mjff and the nscf. My neurologist is joined with mjff so I hope to get on the ground floor of the clinicals as I have done in the past 7 years

Thanks Judy

[laglag in reply to Littlerody]

I believe if you do a Reply under your "reply" to a post it's for the general public, but if you go to their Profile & click on Message then it goes to your personal email & only you will see it. If I'm wrong, hopefully someone will let us know.

[Bailey_Texas in reply to laglag]

correct as for as i can tell

[Bailey_Texas]

general not just you everyone gets them

[Enidah]

I like this train of thought. Having a purpose is so important and that goes along with having a goal. I just got back from riding my bike 10 miles and I am still hiking the hard trails in our hills around here. What I know about that is I can be feeling very unhappy and very much like a patient and then I'll go do one of these things and feel like a person instead of a patient and happy instead of unhappy. It's also important for me to find ways to stay involved with other people, so I'm working on that.

[Bailey_Texas in reply to Enidah]

Do you ride and hike alone.

[Enidah in reply to Bailey_Texas]

Yes, I ride and hike alone. But I'm always armed and dangerous. Hahaha. I stick to the main paths when I hike. Then if I get in a tussle with a mountain lion, or something else, somebody will find me.

[Bailey_Texas in reply to Enidah]

I do crossfit not only for the exercise but for the people. It is a regular class no other PWP i am the only one. We are very close and share a lot about our lives. All young people most in 30 to 40 range some in their 20s. Makes me feel young. All share a common goal being as fit as possible. Tried programs for PWP but too slow and not hard enough.

I am 62 10 years DX

[Enidah in reply to Bailey_Texas]

That sounds great. I am hoping to take up boxing soon.

[JohnPepper]

Hi Bailey. This is a good question because it awakens in patient's minds the possibility that there are many things we can ALL DO, if we think that there is a chance that those things can help us.

There are many patients who are locked into the belief that THERE IS NOTHING WE CAN DO TO CHANGE THE PROGRESSION OF PD!

Well there is a great deal we can all do to change that progression. In this past year my wife and I have travelled from South Africa to England, which took 14 hours. We have spoken to over 400 people at 4 different meetings across Southern England and London. We have travelled to Amsterdam, which took 1 hour and spoke to well over 100 people at 2 meetings. Then we returned home, which took another 14 hours. All this we paid out of our own pockets in advance, hoping that the organisers of the meetings would be able to cover those costs, which they did. My wife and I were accommodated by 3 very nice incredible people, who did all the organising and took us around to all the various meetings and whom we have got to know very well and who were generous and kind to us.

Then on the 1st February we travelled for 16 hours to Australia, hoping to speak to patients in 7 different cities, but we could not get anybody in the first port of call to organise a meeting, but at all the others we were hosted by some wonderful people, who organised and took us to10 meetings, with interested people and we travelled over 12 hours by air and another 6 hours by car to reach all the places in which meetings had been organised. We spoke to over 1200 people and stayed in the homes of 9 wonderful generous people, who took us around their cities and showed us what a great nation the Australians are. I had showed over 50 people how to walk properly etc.

On 1st March we flew to New Zealand, which took 8 hours to reach our destination in the south of South Islend. And in New Zealand we met the most wonderful people you could ever wish to meet. We spoke to over 400 people at 8 meetings in South Island and travelled for 10 hours by air and car. We witnessed the devastation caused by 4 earthquakes, which wreaked havoc in the city of Chrstchurch. That cit was literally flattened. What incredible people the New Zealanders are!

From there we went to North Island and spoke to over 900 people at 8 meetings and travelled nearly 12 hours by car and air. We stayed with 9 different people and were treated to 1 night's stay in a top class hotel in Auckland before returning on a 5 hour flight to Sydney in Australia. All the organisers for these meetings were provided by the Feldenkrais organisation in New Zealand. Dr Norman Doidge spoke about the benefits of Feldenkrais practices in his latest book, "The Brain's Way of Healing". They know the value of using the conscious brain to control movement.

In Sydney we met up with several people who had attended some of the talks and who wanted me to show them how to walk properly. I had done a lot of this at all those meetings and must have personally showed over 40 people how to take conscious control of their walking, and how to bring food and liquids to teir mouths without spilling it.

One man, whom I have known for over 40 years, managed to get together all these wonderful people who hosted us in Australia. He spent a large amount of money in order to get this all to happen in Australia and I am extremely grateful for what he did to bring all of this about.

We had no help from the Parkinson's Associations because they do not sponser anything that has not been tested in double blind scientific studies. As exercise has been tested in double blind studies and reported at the first World Parkinson's Congress, held in Washngton DC in 2006, that excuse does not hold water. Why are they not interested in anything that does not relate to medication? The Feldenkrais organisation is another story. They are very keen to help patients, regardless of what the causes of their problems are!

We are now busy trying to organise two months of meetings in the USA and Canada and here again, the Feldenkrais organisation is starting to help me to organise these meetings. They are a wonderful group of people and we can learn a lot from them.

All this in just 7 months and at the age of 81. My wife's age is very close to the same., and although she has found this to be quite exhausting, she has thoroughtly enjoyed it all. Her late husband had Pd for 22 years, so she knows a lot about Pd.

Thanks for asking this question!

John