Ketogenic diet: Has anyone looked into this... - Cure Parkinson's

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Ketogenic diet

Beemacs profile image
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Has anyone looked into this? It is a low carb diet.

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Beemacs profile image
Beemacs
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I have done. I thinks it does help me but after a while, one gets sick of oily diet.. 🍃

I tried:

1. coconut oil - very little affect that I could definitively identify. That said, I recommend CO mostly as my wife stated she noticed an improvement after I had been taking daily CO.

2. ketogenic diet - no affect

3. high fat (protein), no sugar, 30g carb daily limit - lost so much weight in short time that my wife became very worried about my health.

1 - 3 - the experience caused a general change in my diet as of today / current. I eat less sugar, am aware and act on more healthy eating (note: I eat like I did before the above but with moderation (more carbs and more sugar). I have not gained the weight back that I lost during #3

Beemacs profile image
Beemacs

terrywahls.com/about/about-...

I was told to check this website. Dr. Terry Wahls has MS & she was greatly helped by it.

Donzim profile image
Donzim

people who cannot process carbs will benefit from coconut oil, or certain other oils, in their diet. when the body cannot use carbs for energy, it uses available fat to make energy. if you read on Equine Polysaccharide Myopathy, you will see what happens to horses with this problem and see that they are allowed NO carbs (even the occasional apple or carrot) and must use special feed with high oil content to get energy. of course with horses, this difficulty is more critical because if they can't use all four legs, they must be put down. we tried coconut oil years ago, before Mary Newport wrote her book. it definitely gave don more energy so that was an indication to me that he was using fat for energy. he has always and still does have a craving for carbs....lots of them which tells me his body is searching for an energy source.

i believe there is a similarity between EPSM and the idiopathic PD that my husband has. a veterinarian neighbor, who taught anatomy at the local university and showed horses, always thought don looked like he had the same thing as the horses. it was also interesting that she gave trypophan as a matter of course to the show horses when they had to be moved from one location to another for show. they, like my husband, were high strung to begin with and i had given him tryptophan previously until they took it off the market. maybe the condition is similar to humans for different reasons as i think horses don't process glycogen and store too much of it. may be wrong but we used the protocol for horses quite successfully. we used low carbs, high fat (didn't know what to use then so used rice bran oil), he tried to engage in limited but regular movement like the recommendation for horses. They are not kept in stalls unless absolutely necessary put in small corral to move around but not able to trot/canter/gallop....either no movement or too much movement would cause a flare up. when race horses worth a lot of money have this (and they do because of their big haunches), hyperbaric oxygen is used to relieve the symptoms along with dmso iv (reduces inflammation). it is a hereditary condition and horses with large hindquarters are most likely candidates....morgans/tennessee walkers/draft horses. the vernacular description of the condition is: tying up. btw, don has (had) huge haunches which made him a great football player even though he is short. also very high strung (another plus for football....always at the ready) and he reacted to dmso iv when we went to amsterdam like a miracle. it relieved all the spinal inflammation and he acted and looked normal for two weeks until we got back to the US. then, i found him curled up in the bed, claiming he felt just like he had before our trip. i asked him what he ate that day and it was two bagels, a bottle of beer and a chocolate bar. i'm just saying.....

satwar profile image
satwar

Hi Beemacs,

I''ve been following a ketogenic diet for several years. Everyone will respond differently but I have found that it has dramatically reduced the progression of the disease and has reduced my symptoms (awkward gait and hand tremor). The improvements are very subtle, until one day I couldn't remember shaking throughout the day. I still require my medication, but I haven't increased my meds since 2009. I do notice, however, that even if I delay my meds my tremor is still largely under control.

If you have any questions I'd be happy to try answering them. There are a number of books out now, that I have been very helpful. It is not a quick fix like pharmaceutical medications, but it has gradually improved the quality of my life.

Beemacs profile image
Beemacs in reply tosatwar

Thank you satwar!

I have so many ?'s I don't know where to start! I know it's a low carb but I love bread, pasta & desserts. Anything you can tell me would be appreciated!

satwar profile image
satwar in reply toBeemacs

You will only be eating 35-50 g per day carbohydrate, which you'll get even if you are trying to avoid the stuff (carbs are everywhere). You will not be eating bread, pasta or deserts. The diet is too much of a sacrifice for many people, with no guarantee it will improve your health situation.

It's one thing to prepare your own meals, but it gets very difficult to eat out or travel anywhere. I simply say that I'm diabetic and please remove the potatoes and breaded coatings. You need to educate yourself on what foods are allowed. It's not healthy to yo-yo in and out of ketosis.

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