Syndopa\275 mg

[Raaghu]

I am Raghavendra 80+yrs Fringing wth perkinson\s vibrating legs and head since 15 yrs

no realif or even am not countriolling my self with Syndopa\275 mg

is any advanced drug for it ?

Even i am suffering \burning sensation in neck and face

[Hikoi]

Raaghu

i am sorry to read you get no relief from tremors and you have had them 15 years. Tremor is very difficult to treat. It depends where you live as to what drugs are available for you. Are you only taking syndopa ( carb/lev) 275 in 24 hours? That does not seem much.

[Raaghu in reply to Hikoi]

yes Dear Hikoi i am taking syndopa 275mg oe tablet per day

but i am not geting relief i think i immune tht

[Ramuu]

Mr.Raghu ,

Are you willing to travel to US ?? Maryland Medical university is conducting trial Treatment for Parkinsons , I feel similar to your case. Please go through this link, write to contact person they are the best judge . Are you from Bangalore by any chance ??.

umm.edu/news-and-events/new...

[Hidden in reply to Ramuu]

Ultrasound surgery for PwP

insightec.com/Parkinson_Dis...

healthsystem.virginia.edu/f...

on.ted.com/a01aj

ted.com/talks/yoav_medan_ul...

[mistydog1 in reply to Ramuu]

Hi they are conducting tials in Boston as well. Here is the link to the study file:///C:/Users/Humane%20Education/Downloads/Focused-Ultrasound-Foundation-Parkinsons-Disease-BBB-Workshop-2018-Report.pdf

I'm currently in a study at Brigham and Women's hospital. Depending what type of tremors you exhibit they focuse the FUS on different regions. For me the tremors are on my left side and I suffer with sever stiffness so the region of the brain they targeted was the globeus pallidum . The hope is this method will be a viable alternative to the more invassive DBS and a lot cheaper for patients

[Ramuu]

Yes , same as Maryland Medical University. They asked me to send three video clips of 1min each and I sent them

1 video before taking medication , sitting position and then getting up and walk 10 feet , entire body

2. After you medications (about 30-60 min after medication) , Again sitting and then getting up and walk 10 feet, entire body

3. Video for 1 min, at the time of medication weaning-off ; positions same as 2.

I was not qualified for the trial, comments I received from them " We do not see any dyskinesias (the involuntary uncontrolled movements) We see that with out medication you are much more stiff We do not even see much tremors, which we do not need to see for this study You handle the ball bouncing very well"

For this study they need to see significant dyskinesias after taking the medication, usually it starts within 30-60 min after the PD medication Either leg or arm or both will make very obvious movements that are non controlled nor purpose full

The current study is looking for involuntary movements of arms or legs. These movements are not tremors, but wave like, non specific movements. According to them Patients develop these movements after they take their carbodopa-levadopa medications

[Ramuu]

Please try Prime Rose Oil Caps - 250 mg x 2 times daily , available from Sri Sri Ayurvedha and also Lemon Grass Tea with Honey x 3 times daily , both available at Organic stores or online - Bigbasket