Leojohn. Research.

[Benjie-123]

Hi Leojohn, my husband is in hospital (PD and pulmonary fibrosis) and has had the Neopro patch on for about a fortnight - no results as yet..however, on the web, the Frenchay Hospital in Bristol UK have been doing what sounds a positive trial in another direction. It is an implant into the brain, and called GDNF (growth factor)- just found out they started this last year and were asking for patients to volunteer. I gather they have all the volunteers they need now, but it is worth following up on the web (unless you already know about this). Some of the replies sound extremely positive. Good luck, J

[soup]

Hello Benjie-123, are you a member of the Parkinson's UK Research Support Network? Every month they e mail out a research roundup which summarises the latest news from the world of research.

Also they pass on information about research opportunities.

[paddyfields]

What size patch, e.g. how many mg. I believe 4 mg (which I am now on) is the lowest therapeutic dose. I worked up to this slowly 1 mg a month and take sinemet as well. The patch is meant to smooth things out when used with the sinemet

[JohnPepper]

Hi Benjie. The Frenchay Hospital did a study on this same procedure many years ago, which was very successful. They have had problems with the catheter they used for pumping the GDNF into the brain, which I assume they have now overcome.

My BIG QUESTION is "WHY ARE PEOPLE WITH PD PREPARED TO HAVE A HOLE DRILLED INTO THEIR HEAD AND A CATHETER PERMANENTLY INSERTED INTO THEIR BRAIN, WHEN THE BRAIN ITSELF PRODUCES GDNF WHEN WE DO FAST WALKING?"

I have been doing FAST WALKING for the past 22 years and I no longer have needed any Pd medication for the past 12 years, as I am now free of all my movement problems!

Okay, if I stop doing the FAST WALKING, my Pd symptoms start to return again, so I have to continue doing the FAST WALKING until the day I die. Is that a train smash? I am now 80 years of age and am generally very healthy. I am able to walk at less than 9 minutes a kilometre, which is not too shabby, and I don't even get out of breath doing it. I don't have any of the problems of diabetes or obesity, which is very common today among people of my age.

Why don't you go to my website - reverseparkinsons.net - and read all about my story.

Good luck!

John