Does any ones curl there toes and walk on the side of there foot

[inluvwitu2]

[Hidden]

Yes! Particularly when I've had too much sinemet

[llwwd]

I do too. I don't know what the is cause though.

[Hidden]

yes it hapens to me ,its when meds wear off im on meds 6yrs and its only just started in the last 6 mths , i have pd symptoms only in my right side still but i find it strange that its my left foot that toes curl up in but my right foot i wear down the out side of shoe heels more than left foot ,i started with pain in my right shoulder and had to have phisio before i was diagnoised with parkinsons and hav been told its one of the early signs ,so here i am with frozen shoulder on left side had cortazone injection into shoulder but with toes curling in on left foot it looks like its heading to left side which i dread every day ,i take meds 7 times a day 2 hrs and 15 mins apart and still i get wear offs cant plan anything ahead as i dont know when i will hav wear off ,so frustrating at 54 it shud be my time now after raising 4 sons but what can i do i will never except parkinsons but i am trying so very hard to live with it ,

[Kadie57 in reply to Hidden]

I m soon to be 57 and I have much of the same problems.PT told me my Frozen shoulder is due to bad posture and how I stop myself when falling,(I hit the wall hard) PT gave me an over the door pulley rope to loosing my shoulders. which worked for awhile. The foot/toe curling just started to get bad the last 6 months..what to do? Wider shoes helped. Good luck and Yes Parkinson is hard. Better days ahead!

[michaela13 in reply to Hidden]

I am sorry . I know how you feel. It's so unfair. But there's nothing we can really do. I keep praying for a miracle. Can you try another med?.I'm trying this patch, but it's not working yet.

[Hidden in reply to michaela13]

i hace tried few different ones but sinemet seamed to be the only one that helped ,im now on 6 sinemet plus a day with 3 requip 1mg and sinemet cr ,slow release at nite.i cant be increased any more at this time as i tried and i get bad involentry movements ,i hav been in patient in hospital 6mths ago for 6 days to see wud i be candadate for apro pump but my neurologist said i wasnt bad enough to get it ,dont know if that s good or bad ha ,

[AMHACK]

I was diagnosed with pd in 06 and my parkinsons is only on the right side of my body, caused by a growth on the left side of my brain. All of my symptoms are on my right side except for the curling of my toes and that is on my left foot. I first thought that it was from dehydration so I started drinking a couple of gallons of water a day. When that didn't help I started taking potassium tablets and this didn't work either. Does anyone know of any supplement or fruit or vegetable that might help me?

[pangyo]

me too. usually before i take my 1st dosage of Sinemet (6:30am). I think it is caused by the wear off of the Sinemet. My Solution: when you wake up 5:30 am , i drink 2 large glasses of water and also take my Sinemet after the water. so far so good, it does not happened for a while.

[sherrywolz]

I have noticed it in the last 6 months or so. I take Azilect, not sinemet. Can't say it's from wearing off. Do not walk on side of foot, but can say a lot more pressure is put on the big toe on my right foot than anywhere else. Cint, it's funny you mention the shoulder issue. It was after a frozen shoulder, procedure being done to "un freeze" it, followed by rotator cuff surgery 3 weeks later, that I was diagnosed with PD. So much stress on the body brought it to the fore front with me. Was diagnosed at 45.

[mktbob55 in reply to sherrywolz]

I just read a book by Dr Monique Giroux and she said that frozen shoulder and shoulder pain in general can be a symptom of Parkinson's disease. toe curling and clenching is definitely one of the symptoms of Parkinson's disease as well.

[sherrywolz in reply to mktbob55]

I learned that AFTER the fact, by about 1 1/2 years! Amazing how that works.

[Hidden in reply to sherrywolz]

its so good to talk to people that know how it feels ,no matter how much i explain to others what im going tru i know they dont realy understand .people say when they met me in the shops how well i look but they havnt seen me at home when meds wear off and i am struggling to get dressed to go out, its confusing to people that one minute im running about doing my buisness and then i can go to having to sit and wait for meds to work as my balance is so bad i dont want to fall again ,yes ur right stress is a big problem i had hernia opperation 2011 and 2012 as i had my 4 sons by cesearian causing them ,and for last 8mths mths i have sciatica,due to disc protrusion from artaritis ,then my gp discovered heart murmur i am having heart scan 1st july plz god all will go well i have enough to deal with dont u think ,was diagnose at 48.,

[sherrywolz in reply to Hidden]

I agree Cint. I constantly have people telling me how good I look considering. One thing that has helped me with the disease is making stuffed animals. Helps with fine motor and concentration skills. I do craft shows, as well as post them on facebook, which gets some interaction with others which I truly miss. I haven't worked outside of the home since 2007. AND, I donate a portion of each "critter" sold to the APDA, hoping to help find a cure!

[Hidden in reply to sherrywolz]

awh thats great keep up the good work ,i also sew used to make debs dresses and alterations from my home when my youngest turned 5 ,i hav scaled down since med wear offs started wudnt be able to keep up the pace but i will keep at it as long as i can its great to meet people and good for my confidence as that can be affected so much with this disease ,i too love facebook and hav met alot of lovely people on it ,well heres to another day everyone take care and god bless u all

[PatV]

Yes a lot of strain. I got curling of the toes about 2 years now. Every morning between my synthroid and my sinimet while I'm trying to make coffee and feed the guinea pig. AS soon as I can sit I uncurl them and stretch them out (as if wearing stiletto heels). Also get walking on sides of feet when over medicated. I challenge that with the exercises learned in PD classes. Also had a torn rotator cuff but didn't need surgery. Whew.

[etterus]

I also have it with levodopa wearing off. Anxiety elevates concurrently. Low dose of clonazapam helps 2x daily plus stretching and stationary bike. I take c-l dopa every 2 hrs and sometime an extra ½.

[mktbob55]

Unfortunately or fortunately, we have learned a lot about PD's vast array of symptoms in the last few years . I credit the Michael J Fox Foundation with a big part of this by the exposure and research they support.

[Hoagy]

I walk on the side of my left foot. I wear a AOF BRACE and it all the time except to bath and sleep. My right foot is starting to turn in also doctor has warned me it would. I will soon have a brace for the right foot too. I will wear them until I cannot walk any more with my walker. I will fend off the need for a wheel chair as long as possible.

[Cyrano]

My right foot turns in, my toes curl and I walk on the outside of my right foot. I take madopar. My consultant referred me for Botox injections, one in my hip, one inside lower leg and one in bottom on my foot. The Botox relaxes the muscles and has stopped the problems. Not sure if there are any side effects I'm not aware of using Botox. I plan to go back as the injections last about 4 months I'm told.

[Hoagy]

My left foot is turned in and over it is so bad I use a brace that comes all the way up to the top of my calf. My left Hand is also turned in and my left shoulder and neck is getting stiffer. The last two months my right foot is starting to turn in. I am losing weight without trying to. My mood swings are so bad my wife is having a hard time understanding it.

[Dawn52]

Yes my toes curl and walk on side of foot