It's that time.... hello Mr Consultant - Cure Parkinson's

Cure Parkinson's

26,582 members27,897 posts

It's that time.... hello Mr Consultant

6 Replies

Monday, the start of the new week and for me a 4pm visit to my consultant, and a new one two boot! The appointment is slightly longer than normal I am told, this is so they can give me a good once over and no doubt tell me what's on the slide. They wont need to as I can easily tell them. I am very clear about my condition. It is 1. Incurable 2. Degenerative 3. Could turn my brain into something as useful as a pile of jelly, with the memory recall of an gnat. Oh this is not jolly hockey sticks bravado, this is my take on reality. My reality. The appointment, however long it is, won't be long enough, for I have a mighty list for the agenda. I am going to make a point of making sure I get across the most important things about my experience living with PD.

1. I rise above it everyday and believe me that isn't always so easy when you cannot fasten your own bra, when cleaning your teeth becomes a battle of repetitive movement, choosing my clothes takes 45 minutes of indecisive destroying of the wardrobe and the nausea is crushed by marmite.

2. That drumming saves me all the time, and I may well take my kit in the car, darn fine idea

3. That I am energised, busy, enthusiastic, fulfilled, have ambition, 'win' something everyday.

4. My life is full up with so many diverse and wonderful things that I often clean forget

5. The impact whilst hit like a tsunami, was simply that, one giant wave that went. I picked up the pieces and moved on

and I could go on and on and on...

Its simple, PD is about my focus on my wellness. I'll let them focus on my illness, after all, it is their job.

6 Replies
Pete-1 profile image
Pete-1

Hi Colleen,

Today's top tip ----> get an electric tooth brush. Very good even if you don't have PD.

in reply toPete-1

yep i had one, must replace it ! thx

inkyorion profile image
inkyorion in reply to

Hi Colleen, youvé sparked me up for my visit ...same time tomorrow. I get on really well with my consultant but he's more likely to spend the time talking about research, asking why Im not going to Montreal and what was I doing in Feakle (County Clare) last week, learning step dancing. (Not the coolest dance , I admit but great fun!) I get longer than most of his patients but thats because I do my homework and am not afraid to challenge him..I get the distinct impression he feels a lot better about what he's doing after one of my visits. just wish I got as well paid as he does for keeping him going. Would love to be a fly on your wall this pm....lol

compucure profile image
compucure

Hi Colleen it is good to see you posting again! I guess our lives post "tsunami" are not about waiting for the storm to pass, but about learning to dance in the rain. Stay tough!

tlongmire profile image
tlongmire

Colleen you always inspire and energize me. Glad to know I'm not the only one that can't fasten a bra! Thanks for the laugh. :-) It's 2:31 a.m. Mountain standard time. I should be sleeping but we all have these nights. :-(

PatV profile image
PatV

all so true. takes me ages to get ready. I've decided anything that doesn't make the wearable category more than once goes to the thrift store no matter what my attachment to it is. My clothes have to fasten properly, hang properly, fit in the morning and in the evening when the ibs kicks in. If the shoes come off while crossing a street, they go to thrift shop :'(

Not what you're looking for?

You may also like...

If PD doesn't own you, what does....

A lovely note posted by Hamish, I have just read. He cites a much used phrase 'PD doesn't own me'...

Hello

I'm new to this site and happy to have found it. I was diagnosed 2 1/2 years ago with difficulty...
Rscott profile image

Planning life after diagnosis : prioritizing what is important, being realistic about limitations, coping with anxiety ??

I need advice from those who have been through this but I’m also having a very hard time with...

It's life

My life with Parkinson's Just recently I have come across several personal accounts of life living...

Yesterday's post by Jim C. reminds me my 6 mos report re FUS PTT from side 2 is due. (Not as exciting as yesterday's, tho.)

I had the other side done April 28, 2021. Yesterday's report from Jim C. is certainly encouraging....
MBAnderson profile image

Moderation team

See all
CPT_Aleksandra profile image
CPT_AleksandraAdministrator
CPT_Anaya profile image
CPT_AnayaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.