How many see movement disorder spécialist? - Cure Parkinson's

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How many see movement disorder spécialist?

ivyanne profile image
14 Replies
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ivyanne profile image
ivyanne
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14 Replies
shall1019 profile image
shall1019

I do at the Parkinson Institute in Sunnyvale, CA. Also see internist and psychiatrist.

Beachdog profile image
Beachdog

Not yet.

wifeofparky profile image
wifeofparky

Hubby did. He got much better care and control of his symptoms with the specialist than with the regular neurologist.

olpilot profile image
olpilot

I know personally of pwp who were misdiagnosed by " a movement specialist". I am one, this is much more than a movement disorder. This movement specialist delayed relief for more than me by looking only at how we moved. I took 3 steps was told that I didn't have Parkinson's, 2 years later I finally got somone to listen to the sum total of me symptoms, and got relief. Seems movement specialist.only look at one part, their part.

jillannf6 profile image
jillannf6

hji

i have psp and was dxd by a mmovement disorders specialist who i see every 8 months

lol Jill

:-)

cabbagecottage profile image
cabbagecottage

My husband sees a chap at the care of the elderly clinic who also deal with Parkinson's . I feel we all get lumped in together , They have a set rules they follow . you can't just do that because everyone is so very very very different

PatV profile image
PatV

I do at NYU in NYC. every 4 months

OldJoe profile image
OldJoe

I do at Montreal General every 4 months.

quirkyme profile image
quirkyme

my husband has a general neurologist and sees at physical therapist at Boston University which has a portion of Sargeant College dedicated to PD and excercise. He's 6 years into this.

ivyanne profile image
ivyanne

I f i doi see à MDS in Ohio. at an MDS centre. .Its been 10 years now..i havent seen him in awhile but have an appointment this month.. i hope he can offer me some advice or adjust my meds.. . He always tells me there is nothing other than Sinemet and Comtan.The PD has. progressed in the past year and i need help coping ..dyskenesia is dibilitating and freezing is keeping from leaving the house.. .. even with à walker or cane. Im getting desparate..

lovedogs profile image
lovedogs

My husband has a whole team of doctors at UF. He is getting excellent care. It takes MDD, NS, OT, PT, an others to help deal with the many different symptoms of PD.

CheriH profile image
CheriH

I see a movement disorder specialist at Vanderbilt Neurology Clinic every 3-4 months.

srarndt profile image
srarndt

I do. He is much more up to date and thorough than my regular Neurologist was...per her admission as well. And, she was good!

One bit of info that might help...he (The MDS) is also a well respected researcher in the PD field, so how fair is this comparison??? Uncertain...

Steve

Bisbee, AZ

kkamegranny profile image
kkamegranny

I just started seeing one 4 months ago and cannot believe the change. Between making sure I had proper speech and physical therapy, a DaT Scan and a swallow study and finally after all tests and blood tests were back she adjusted my meds. I'm feeling so much better! Now, yesterday. I was diagnosed with Stage 4 Renal Failure. I'm 60 and falling apart. VERY discouraging!

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