Has anyone with CMT have a parent or ... - Charcot-Marie-Too...

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Has anyone with CMT have a parent or grandparent that served in the Armed Forces between 1940-1949?

Whiterose profile image
17 Replies
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Whiterose
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17 Replies
snowmancarnage profile image
snowmancarnage

I'm not sure if this counts, but my father was in the home guard and he had CMT, although it wasn't confirmed until the 1960's after I was born.

cleo9 profile image
cleo9

I have CMT and my father was In The RAF during the war but I dont think he ever suffered with CMT

KEBS profile image
KEBS

My grandfather was a Royal Marine in world war 2, he served on a secret landling craft. He was never diagnosed as he passed away before we were all diagnosed but we all suspect he may have had it.

PhilC profile image
PhilC

My father was in the Army (Royal Engineers) during WWII. He had CMT 1 and I guess the Army knew that as he was never posted overseas and worked mainly on sea defences, gun batteries etc.

Chelsea1504 profile image
Chelsea1504

My dad was a Royal Marine between 1941-1958. My son has been diagnosed with CMT but not sure yet if anyone else has it.

Penarthgran profile image
Penarthgran

Yes. My father served in the army. I suspect that I inherited my CMT from him but he was relatively unaffected.

curlyburli profile image
curlyburli

My dad served in Libya during the war. He was a weak child and sent to a special school. Yet he was conscripted in WW2. He had symptoms of CMT (died not knowing he had it).

platespinner profile image
platespinner

Yes. I think my father may have had mild CMT, there was a family history of pes cavus in his mother's family. However he was a test pilot throughout most of the war, so if he did have the gene he could only have been mildly affected. He became very overweight and developed what the characteristic stance many of us with CMT develop as we grow older.

sarajayne profile image
sarajayne

Yes my dad was

ashgrove profile image
ashgrove

My grandad was in the second world war, he had CMT but I doubt if he knew it and my Dad served in the RAF, he's just been diagnosed at the age of 72, fortunately his symptoms are very mild.

Barry52 profile image
Barry52

Is this relevant to CMT ?????

I am a caseworker with the armed forces charity SSAFA, and a former Soldier despite Pes Cavus

Whiterose profile image
Whiterose in reply to Barry52

Hi Barry, my father was in the British Army and was sent to Hiroshima after the nuclear bomb fell. We wondered if there was a connection with those in nuclear sites and CMT.

Barry52 profile image
Barry52

Thanks for that, it will be interesting to read on .....

I do find trying to get clear answers to questions very difficult from the medical world and very often label them

Dr oooh,Arrr, Maybe Think so,getting a straight forward answer from Neurologist's is like pulling teeth

Whiterose profile image
Whiterose in reply to Barry52

Hi Barry, I think you have a point. I don't think the medical model is so helpful at times, because they don't always have the answers to our questions. This web site is proving to be a good forum so that people can ask questions and share their stuff.

CMTUnitedKindom profile image
CMTUnitedKindomPartner

Whiterose - CMT as a condition was described LONG before the second World War and as such, has no connection whatever to possible contamination from radiation.

But it's interesting to hear about - amazing how many of you had undiagnosed ancestors!!

My grandfather - who had CMT - was in a deferred occupation - he was a builder in Birmingham, and spent the war busy building up what got knocked down.

Interestingly, he and his family (all his three brothers and sister) had CMT and knew the name of what they had back in the 1930s - I'd love to know now who told them the name of the condition, when it was so rarely recognised back then. It could, I suppose, even been a colleague of Howard Tooth himself, since he didn't die until the 1940s, I think.

Karen

Whiterose profile image
Whiterose in reply to CMTUnitedKindom

Thanks Karen,. we don't know if radiation may ascerbate symptoms for the individual with CMT. We need to ask such questions, despite the genetics, hence my query.If people are undiagnosed how do we know they had CMT and not another form of muscular dystroraphy or neuropathy? Just a thought.

Whiterose profile image
Whiterose

Thanks to everyone who answered my question on this issue.

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