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Charcot-Marie-Tooth UK
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Foot up fitted

YIPPEE my therapist came today with the Foot up braces i have been out giving them a trail run walked around Tesco no trolley or stick i find i am walking with a different style my left a always walked leaning outwards which caused me to have hard skin forming which was uincomfortable. i am putting down & can feel the ball of my foot touching the ground. Dont feel any pressure on my ankles at all. Also i find that i'm not looking down at my feet as i walk. It's early days i expect much improvement in day to come. These are a blessing. Highly recommend them. All i need are bionic hands as CMT makes them weak. Never mind i am thankful. Thank you Laura for the speed in providing the Foot Up so quickly.

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Hooray, Chuckles !

I'm really pleased you have found success. I hope the foot-ups will continue to help and improve your gait. It must be an amazing sensation to be able to walk without constantly looking down and planning each step.

If you ever track down a bionic device that helps our CMT hands, let me know !

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They sound great!!! Good luck with them!! Lynne

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Hi just wondered what this foot up is.?at first I thought it was something to wear in bed to keep the feet supported as it can be painful when in bed.

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ossur.com.au/injury-solutio...

Follow the link. I wear one on both feet. They definitely make me more stable but I still have to look down when I walk but help stops tripping.

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I wear them on both legs, the problem CMT affects my hands also i cannot grip or hold well i cant pull the foot clip to connect to the clip on my ankle brace. I am going to my engineering comp i worked for to get a gadget i have designed to hook with a hand grip so i can hold which will help me pull the two clips together. Hopeful it will work.

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I hope so. I struggle sometimes but my husband helps me with mine.

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I will let you know if my idea to help me connect the 2 clips works i will have to patent it, Joke!! I will take a photo & post on post it may help someone with the problem.

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I have use these for years,love em! I leave mine clipped all the time; l just slip my shoes on with foot up already clipped, then place my foot on floor to make it at 45 degrees from my leg and then wrap straps around my lower leg. And away I go..to remove I release velcro wrap and slip shoe and brace off all in one.

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Hi chuckles , I've just received mine just for my left leg not had a go yet also splints to wear for bed to try and stop the spasms and some splints for my hands to try and keep them in a straight position , think I'm going to look like a robot going to bed lol but I don't care if they help , glad to hear your happy with yours . Will update you when I've tried mine

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Hi Pixie i hope you get on with foot up i'm sure you will find it helps, my fingers are not bent i just don,t have any strength in my hand, i struggle to open a bag of crisps i tend to use my teeth when i struggle to open anything. Good luck wish you well in you new trials.

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