Constant pain :(

Hi all I've been non Stop to the doctors for years every time gettin told I'm fine it's nothing! Well today doctor bought up fibromyalgia and said she is 100% sure its this. She's transferred me to a neurologist for a spinal Mri for a second opinion but if all comes back fine then I'm diagnosed with fibro. I'm scared I don't really know anything about this, I've googled things and it sound exactly like what I get, but does it get worse as I get older ? Any advice will b much appreciated I'm only 25 and really scared, but also happy that I might finally have answers.

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  • I was diagnosed with Fibromyalgia 15 years ago. I had no idea what is was. The consultant was pressing many different points on my body (painful) he told me what I had & sent me off with leaflet & Amitryptline which made me feel dreadful (lots of people have good results with it) cut the long story short I gradually got better but still would have the odd bad day fatigue etc.

    I have psoriasis & developed psoriatic arthritis I now have symmetric arthritis in all joints including a lot of osteo

    Overwhelmingly my worse pain is (MRI confirmation) from spinal stenosis in my lumber spine L4 L5 L5 S1 neck C3 C6 facet osteo. This has given me chronic pain for the last 6 months with no relief. I am now trying the Butrans patch.

    Don't worry in my case fibromyalgia improved but we are all different. The only drug I could take was Ibuprofen 400 that helped a lot.

    Take care don't worry x

  • Please don't be scared , there is an awful lot that can be done to manage the condition. I would advise you to try and keep as fit as possible because when you get to my age (50s) and you are not so fit when probelms start its Harding to keep active. When you get diagnosed have a good chat with doctor and get as much info as possible. Good luck 😄😄

  • I am a little older than you (!!!!!) and have had rheumatoid arthritis for just over a year. At my last hospital appointment I couldn't understand why my results seemed to show no worsening of the inflammation yet I was in such pain. I was lucky in that the nurse had a ' light bulb' moment and ran and got me a booklet. Once we went through the symptoms and she did pressure tests it was obvious to us both it was fibromyalgia. The arthritis and fibromyalgia aggravate each other but I am not as bad as many people. I was told to use painkillers when necessary and also heat pads. My hotwater bottle is used regularly lol. I can't help you much as I am also newly diagnosed but I am sure there will be plenty of people who can advise you......and me. Keep in good contact with the hospital and they will help. I promise. Make sure you rest when you feel you need to as well.

    Take care 😊

  • Hi Stacky123

    I sincerely hope that you are feeling as well as you possibly can be today? It is wonderful to make your acquaintance.

    I am so genuinely sorry to read of how you have suffered and struggled and I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Hi I started at thirty with Fibromyalgia. It was scary but one comfort is it doesn't do damage to joints like arthritis does and they say it won't get worse. I've had it 15yrs now although they took five years to diagnose it. I still work full time ( with a few adjustments as it is covered by dda).I no longer go to the hospital but see my GP regularly. I do take anti depressants and also pain killers. I have a slow release dihydrocodeine as it then doesn't stop working after four hours and wake me in the night. I do see a physio regularly which isnt cheap but helps me a lot. I haven't attended on but pain clinics are said to help. My hospital did however run a 6 week course that covered everything from exercise to coping with pain which was really good. Keep up to date with your GP etc and be open with family and friends (and work colleagues) you will need to learn to pace yourself as if you do too much one day it will knock you back the next but once you have the diagnosis you can start to learn to manage it but don't worry there is a lot more info available now and remember a lot of the websites only have the worst cases.

  • Hi I don't have fibromyalga but I do have complex pain syndrome I was diagnosed when I was 15 it took 2 years to diagnosis cause they couldn't see anything. I'm know 30 years old and one thing I have learned is that any food that are inflammatory will make you pain worse. Anti-inflammatory foods like avacado, coconutoil , coconut water, berries, and lots of green vegetables etc are very good for you. Also I use an electronic fitted sheet to keep me warm at night to stop my legs from driving crazy but some like tonight even that doesn't work. Keeping fit is supper impertant. Also be aware of what nutrants your meds are taking from body so you caN supplements to replace them. Sorry if this a lot of information but hope it helps

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