new to the group and have found the questions and answers very interesting; recently diagnosed (accidentally due to bloodwork) but otherwise healthy (I run marathons/ultra marathons); I am on the watch and wait and will see the oncologist in March 2022 unless I have symptoms and need to go earlier.
New here: new to the group and have found the... - CLL Support
New here
Written by
celticfan
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JigFettlerVolunteer
Welcome!
Take time to read the Pinned Posts.
All questions respected. This is a long journey. Your fitness will be an asset to you I am sure.
Locking your post to the community only will attract more responses generally.
Do note also, the posts can be searched. Much knowledge and wisdom resides within!
Wishing you well.
Jig. UK
Thanks. I noticed you are from the UK. I live in the US but am from Belfast, Northern Ireland. After the initial shock of the diagnosis things have settled down, especially as I am stage 0 per the oncologist. It was interesting to read that some people had doubling of their lymphocytes following the COVID vaccine (at least that is what I think I read). Have you read or heard that from people with CLL. I am vaccinated and asked my PCP to double check my blood work and am awaiting the results.
NI! I was last there as a wee lad! I hale from Scotland originally!
There is a lot in the forum - probably worth doing a search on - as well asking the question.
CLL is a medical complexity. Its a heterogeneous, idiosyncratic and fluid condition. Many treatments now exist - further complicating the CLL journey. The whole Covid vaccination / antibodies thing further complicates. In CLL Ls do rise, and will double. It stands to reason that these events will coincide with a vaccination, BUT it does not mean they are related as cause and effect.
Vaccines will, like a virus, trigger the immune system to upregulate antibodies synthesis to the vaccine, as it would to a virus. The cells that will produce the IgG immunoglobulin are the B Lymphocytes - the very B cells that are affected in CLL.
CLL makes us vulnerable to Covid - and any infection. We do know that many with CLL recover from Covid, some even found to have had asymptomatic Covid. This evidences the complexity in which we all now live and try to stay safe.
Sharing our experience serves in large part to help us all.
Ultimately its important to check the evidence for any cause / effect issue. And also - like a piece of art - the provenance of information - especially if we choose to act on it.
Much conspiracy and myth abound.
Many on this Forum are masters at sorting facts out for the benefit of all. Please stay tuned!
BWs
Jig
