Introduction: Well, I tried to fill out my... - CLL Support

CLL Support

23,140 members39,744 posts

Introduction

sphexx profile image
9 Replies

Well, I tried to fill out my profile but it seems it won't let you add more than one treatment :(. Maybe I'll try again later, maybe, but it's an unpromising start!

Written by
sphexx profile image
sphexx
To view profiles and participate in discussions please or .
9 Replies
sphexx profile image
sphexx

I tried again and succeeded, maybe my fault :(.

lankisterguy profile image
lankisterguyVolunteer

Hi sphexx,

-

I think you have listed your treatments in a section called "Health Interests"

-

To edit your profile, please click on your own icon in the far upper right corner of this screen and then choose "profile" to get to this page: healthunlocked.com/user/sphexx

-

Then click on the white box that says "Edit Profile" in the blue banner at the top of the page.

You can add as many lines and treatments as you need. See mine as an example:

-

healthunlocked.com/user/lan...

-

click the "read more" to see my list of treatments.

-

Len

sphexx profile image
sphexx in reply to lankisterguy

Hi Ian.

I see they are listed in Health Interests but not by me, glitch somewhere. In my profile (I have just checked again) there are no “interests” listed and treatments are correctly listed as such. Can’t see how to remove or hide them they don’t show up when I edit profile only “other interests. Not terribly important.

lankisterguy profile image
lankisterguyVolunteer in reply to sphexx

When I look at your profile it only says "Hi I'm sphexx" and nothing else.

It is possible that your updated profile info will appear later today for me (in the USA) - we have seen this phenomena before, and I think that AussieNeil attributes it to server updates that take some time to propagate around the world.

I will let you know when I see your profile appear.

Len

sphexx profile image
sphexx in reply to lankisterguy

My reply crossed yours.

The “Hi I’m sphexx” may have been added automatically, I don’t think I put anything there. I’ll edit it later, though it won’t be as detailed as yours :) .

sphexx profile image
sphexx in reply to sphexx

Yes, the "Hi I’m sphexx"is a placeholder the software puts in. now amplified.

sphexx profile image
sphexx in reply to lankisterguy

Hi Len

Sorry, misread your name!

On reflection, I think the website lists treatments as “Health Interests”, not unreasonably. Your treatments seem to be listed under (maybe) “your story”.

So I think it’s all good. Thanks.

Cheers

Richard

cllady01 profile image
cllady01Former Volunteer

Welcome sphexx, I have read your profile and it is now complete. And yes, the "health interests" are placed automatically from your profile write-up. It appears you have done well even with the number of treatments you have had. I do hope Ibrutinib will continue to be good for you.

sphexx profile image
sphexx in reply to cllady01

Thanks!

Not what you're looking for?

You may also like...

Self-introduction

Hi, I'm a 72-year-old USA male, no symptoms, but diagnosed a month ago with CLL through routine...

Introduction

Hello Everyone I was admitted to hospital with a suspected pneumonia 3 months after the birth of my...

Introduction

Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced chemotheraphy with...

Introduction

Hi, I’ve just been diagnosed with CLL and I intend to immediately change my lifestyle and diet by...

Introduction

Hi about to start treatment on ibrutinin for 17p been in ww 2 years feel fine other then the usual...