Well, I tried to fill out my profile but it seems it won't let you add more than one treatment :(. Maybe I'll try again later, maybe, but it's an unpromising start!
Introduction: Well, I tried to fill out my... - CLL Support
Introduction
I tried again and succeeded, maybe my fault :(.
Hi sphexx,
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I think you have listed your treatments in a section called "Health Interests"
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To edit your profile, please click on your own icon in the far upper right corner of this screen and then choose "profile" to get to this page: healthunlocked.com/user/sphexx
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Then click on the white box that says "Edit Profile" in the blue banner at the top of the page.
You can add as many lines and treatments as you need. See mine as an example:
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healthunlocked.com/user/lan...
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click the "read more" to see my list of treatments.
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Len
Hi Ian.
I see they are listed in Health Interests but not by me, glitch somewhere. In my profile (I have just checked again) there are no “interests” listed and treatments are correctly listed as such. Can’t see how to remove or hide them they don’t show up when I edit profile only “other interests. Not terribly important.
When I look at your profile it only says "Hi I'm sphexx" and nothing else.
It is possible that your updated profile info will appear later today for me (in the USA) - we have seen this phenomena before, and I think that AussieNeil attributes it to server updates that take some time to propagate around the world.
I will let you know when I see your profile appear.
Len
Welcome sphexx, I have read your profile and it is now complete. And yes, the "health interests" are placed automatically from your profile write-up. It appears you have done well even with the number of treatments you have had. I do hope Ibrutinib will continue to be good for you.