Venetaclax and retuxin: Hi I will be starting... - CLL Support

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Venetaclax and retuxin

dianejoyce profile image
3 Replies

Hi I will be starting this treatment plan next week. I start the venetaclax, then next month I start the retuxin. I've had retuxin before and tolerate it fairly well. I haven't had Venetaclax before. Any advice? What are the common side effects? Are there any dietary restrictions?

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dianejoyce profile image
dianejoyce
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lankisterguy profile image
lankisterguyVolunteer

Hi dianejoyce,

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If you follow this link you can see all the 1200 previous discussions on Venetoclax and Rituxan:

healthunlocked.com/cllsuppo...

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Also you may want to edit your post title and change the spellings to Venetoclax and Rituxan, then the "Related Posts" box on this page will also list the most pertinent previous posts.

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Len

PlanetaryKim profile image
PlanetaryKim

Hi dianejoyce. I started venetoclax 4 months ago. The first 4 weeks of ramp-up involve some very close monitoring of you and your bloodwork. I was having severe problems with bloating after meals. It was quite miserable. I think it was the venetoclax, since the bloating problem started once I got fully ramped up. I am getting that under control by being more careful of what I eat, and how much, and using Beano (digestive enzyme). That was my only persistent problem since starting venetoclax. Good luck to you!

chuckh profile image
chuckh

I hope to keep up with you and share my experience as well. I am shortly going to start taking Ventoclax (sp) myself beginning on the 16th... and discontinue the Imbruvica... I would have started it sooner .. I have the drug... but I was forewarned after being prescribed that some sort of pre-chemo education is required prior to beginning this drug. The dr himself did not seem to have an issue, nor do I... because I can read instructions. However when just on a lark.. I asked a few questions regarding potential side effects of this drug of the pharmacy they seemed shocked that I had not had said pre-chemo instructions. HAH...typical me... always a trouble maker..

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