Motillium and CLL ?

[Emerfly]

Am experiencing my second bout of severe cramping and diarrhoea in the past month. Feeling miserable . Under normal circumstances I would let it take its course and allow whatever bug/virus/poison that is in my system make its own way out . I look after my 93 yr old mother . She moved in with me 5 months ago as her health and ability were seriously deteriorating , she is not good at the moment . Last time she caught the bug from me and was hospitalised for a week , she came home last week and is very frail since . My question is, would it be ok to take motillium ? Before I’m asked, yes i texted family looking for help st 6.30 am . Last time everyone was away and it was a nightmare .

[Susiecarer]

Always best to check with your clinical nurse if you have one. But as far as I am aware taking motilium (loperamide/Imodium) is perfectly ok as long as you do not exceed the dose of 8 in 24 hour cycle.

Hubby takes loperamide now after his stoma reversal, he always took it whilst having chemo. Can take anything up to 8 per day.

Hope this helps, and it sorts itself out.

Susie

[Emerfly in reply to Susiecarer]

Thank you susie . Have taken motilium and it had eased my symptoms .

[MsLockYourPosts Passed Volunteer]

This is not the same thing as Imodium. It is Domperidone, which goes under many trade names. When I looked it up I was interested to see that It is not legal in the US. I would certainly talk to your doctor about taking it. You also need to know whether you have something infectious going on that might put your mother at risk.

[Emerfly in reply to MsLockYourPosts]

Thank you for replying , my sister has moved in and is looking after my mum and i . She told me this morning she gave me Imodium not motilium ! I’m feeling better . My mum moved in with me she was discharged from hospital, Having been admitted with similar symptoms . I’ve had same illness 3 times since then and she has been hospitalised again recently . Whatever it is , it’s not going away . Seems to lie low for a while and come back . We are wondering now is it something like Giardia ? My mother had been living in very unhygienic conditions with my brother , a chronic alcoholic. Will go to my GP tomorrow .

[MsLockYourPosts Passed Volunteer in reply to Emerfly]

Good to be checked for all possibilities, given the pattern that has developed between you and your mother. I hope you find an answer!

[Emerfly in reply to MsLockYourPosts]

Thank you

[Shedman in reply to Emerfly]

Giardia tends to have a very typical involvement of eggy/sulphurous belches.. Some doctors will say that there are various other conditions that produce this symptom, but it certainly is a classic of Giardiasis...

Rest is key.. And it is difficult getting a suitable specimen for testing from the thinnest diarrhoea..

Now, your cramps remind me of constipation - the odd thing is that fecal impaction in colon or rectum can result in liquid escaping the blockage.. Identical to diarrhoea, but the cause is in fact a blockage..

At the time of my suffering this summer I was all rather confused -- knew I had been dehydrated, but the pains were so great I feared worse.

My go to was Movicol - stool softener.. Once my problem resolved, the world was a better place!

I sense you have better insight than I had - in which case minimising infection risk is all about hand washing, using you own towel, and additionally such things as cleaning door handles and so on.

Take care. I hope it clears as soon as it arose.

[Emerfly in reply to Shedman]

Thank you Shedman , went to GP today so am having blood work done on Thursday , a stool sample as soon as I can produce one ...the Imodium side effect making that a wee bit difficult . And an urgent colonoscopy , so hopefully will get to the bottom 😬 if what’s amiss fairly quickly ! Am taking all the necessary hygiene precautions , my house smells like a swimming pool from bleaching every surface , door handle etc and visitors presented with masks, hand sanitiser and paper towels . My doc says Imodium isn’t a cure all , it just stops the symptoms and should only be used if absolutely necessary . If your travelling or toilet unavailable . Best to let the bug/virus/poison/parasite out. I have not had sulphurous belches or wind . So we’ll see .