Anniversary: I am coming up to my one... - CLL America Support

CLL America Support

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Anniversary

Jemisavs5 profile image
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I am coming up to my one year from diagnosis of CLL (trisomy 12). I have been on wait and watch.  I have my doctors appointment next week.  Is there anything I should ask the doctor to do as far as further blood studies (fish) etc.  My biggest complaint is my lymph nodes especially under armpit and neck n 

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Jemisavs5 profile image
Jemisavs5
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tclementi profile image
tclementi

Hi Jemisavs5- Thank you for your post and sharing your experience. While we can't offer medical advice or suggestions, I can offer you some pointers from some of our videos. Your best bet however is to take your doctor's advice when it comes to blood tests. Your doctor is probably going to take a CBC (complete blood count) and measure your hemoglobin and platelets (see this video from Dr. Susan Leclair who does a nice job of explaining it here-patientpower.info/video/und... ) He/she might also measure your lymphocytes and immunoglobins. Beyond that, it's up to what you and your doctor are comfortable with- if you want a FISH test, bring that up. I would also suggest talking about your lymph node discomfort and see if there's anything that can be done about that. 

Please let us know if this helps and keep us posted on how your appointment goes. -Theresa

Fellow CLL patients/ "watch and wait -ers" - any suggestions? I know Jemisavs5 would love to hear from you! 

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