Hi all !
A post from Greece !!
My daughter (6 y.o) was diagnosed with a choedochal cyst late last year, after a dose of abdominal pain. Blood work at the hospital showed signs of pancreitis, and they performed a scan in the morning , which revealed a cyst like formation on top of the pancreas. They firstly assumed that it was on the panreas, where cysts may form due to some sort of injury (fall, hit to the stomach).
They sent us to see specialists, where an MRI was performed, and they diagnosed, most likely, a pancreatic cyst (likely type 2) The specialists here have chosen to wait a few months, to see if the cyst subsides. Today we went in for a scan (our 4th), and it seems the cyst has remained the same. Will get results to (along with blood tests) to the specialist surgeon next week.
Needless to say, that this has caused a lot of stress and heartache to myself and my wife. There were NOT any of the classical signs (jaundice) with our daughter, and she has always been a very active child, and still is. Dancing, ballet, gymnastics (we have stopped them for now).
Since the cyst has not subsided, it will have to be removed surgically.
The specialists and our peadiatrician have told us not to stress. He has said that these operations, although rare, go well, and kids go on to live a normal life.
What sort of surgery are we talking about here ? Will the scars be major ?
Is this true ? In the sense that if it is operated, will it lead to further surgery latter in life ? Will any more complications arise later in life ? Can she go on and live a normal life ? How often to re-evaluations happen ?
Secondly, which hospital/center doctor in Britain is the best in these type of operations ? We plan to have the operation in Greece (the surgeons are competent), but are considering all options. I am just afraid due to the fact that these cases are so rare, that you would rather have surgeons with more experience handle it.