Hi my daughter has been diagnosed with alagille syndrome im very new to this not sure what im doing hoping i can get some helpful info ta

[Lovemybabies2]

Not really sure what to put

[Wrinkles1]

Hi i have lived with Alagille for 35 years and have had lots of ups and downs. I almost had liver failure during my pregnancy with my son who was delivered 12 weeks early, he has Alagilles and had a liver transplant 3 years ago courtesy of his dad as a live doner. Please feel free to contact me..

[lazz2 in reply to Wrinkles1]

Hi Wrinkles. Just saw your post on line and was wondering if I could ask you about growth with Alagille. I have a 2 year old daughter with the condition and she is about the size of a 1 year old. Have been asked to consider having a peg put in to increase the feed. Want to do the right thing for her. Unsure what that is at the moment.