Does anyone have xanthoma? If so I would like to hear from you !

[baby7567]

[Hidden]

I don't currently but if I ate any fat I soon would.

[Hidden in reply to Hidden]

I have a very rare condition called Lipoprotein Lipase Deficiency (LPLD) which means I don't produce the enzyme lipase which breaks down fat. The only treatment currently available is to maintain a very low fat diet. If I do eat fat it travels around in my bloodstream causing me to get xanthomas, stomach pains and pancreatitis. There are information sheets on the condition on the HEART UK website.

[suki65]

Yes i have had them only within 12 months they have gone they where on my elbows ,knees and my thighs at the back .

Do you have the problem ? I never had them around the eyes ,i have lots of info

[baby7567 in reply to suki65]

I had them on my hands and feet (achilles tendons). I just had an operation one month ago on one foot.

[Googol]

Yes I have it. Lots of it. It was the reason I went for a cholesterol test (well once I'd googled painless orange lumps). What would you like to know?

[baby7567 in reply to Googol]

Well i live in France and xanthomas are very rare here. It´s nice to talk to people who have same as me.

[baby7567]

I used to have them on my hands and also on my achilles tendons. I've had three operations to remove them. I still have one operation left for the second foot.

[suki65 in reply to baby7567]

have you not tried getting rid of them naturally by intermittent fasting eating for 8 hours a day only for 2 months and taking opti omega 3 i found this helped me