What sort of information would you like to see on the CAUK website?
Useful information: What sort of... - Cavernoma Allianc...
Useful information
I know your question was what sort of information - but a logout option from the members area would be good, feel as If I am still logged in when I leave the website, as can go back to the website within the same internet session and get into members area without been asked to log in again.
A list of questions to ask your doctor - like the page on the angioma alliance site, which is in the newly diagnosed section of the about cav's page angiomaalliance.com/pages.a...
Pregnancy & Pediatrics. All these can be found under the following link for about cav's page on the angioma alliance site angiomaalliance.com/pages.a...
CCM3 Mutation - link for the action group ccm3.org , as they need to have everyone with this gene connected for research etc, they also have a closed facebook page. Connie Lee is the Program Coordinator.
Thats all can think of at the moment. Thanks.
That's really helpful, and I look forward to these things happening quickly. Remember to remind me!