Sharing information and experiences

[fjgent]

I'm trying hard to get this started. So far I've shared lots of stuff via facebook and email, now I'll try this. I've noticed that over the past few months much more sharing has happened, and for many people this has been really helpful.

[gwynne]

I was diagnosed with cavernoma 14th march 2012 . I had a bleed and it affected my speach. I saw a consultan at the queens hospital and i don't need surgery and will right its self. Thats all good but i'm still vague and would love to hear from other suffers ( i'm female)

[fjgent]

Hiya! Have you been in touch with Ian Stuart [e-mail] ? He's incredibly helpful and supportive.

[rous]

I would love to contribute creating the community in any way I can... let´s talk

[fjgent in reply to rous]

Hi - have you been in touch with Ian at Cavernoma Alliance? Makes sense to join Cavernoma Alliance UK first. Welcome!